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Battling the MSG Myth » Archive » How You Made the MSG Connection » Fibromyalgia? « Previous Next »

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Posted on Tuesday, July 10, 2001 - 1:44 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Wow, I just learned what fibromyalgia was about 3 days ago and I am amazed. I think I had it. I never was diagnosed, but I had so many of the symptoms it's uncanny. I always thought it was stress related, and then I figured out it was also mainly diet related. I very slowly figured it out, like many of you here.

I did go to the doctor, in the beginning, because I used to get this tingling in my big toe, which progressed to my feet and then my whole leg would go to sleep so easily. The muscles under my eyes were twitching (mainly I determined from lack of sleep) I was freaking out, I thought I had MS. I noticed I never could languish in bed anymore, I jumped up wide awake, like I hadn't even slept. My doctor told me I didn't have MS, and suggested maybe I should go back to my old running routine, so I started excercising again, alot, and it helped some, but not enough. I finally had to quit excercising, I was so tired all the time, had muscle twithcing etc. Then the infections started and I had one infection in my throat after another, they referred me to an ENT who gave me shots of cortizone for the allergies, tried to put me on a soft diet and gave me muscle relaxers and pain relievers and anti-inflammatory drugs (a whole arsenal of pills) - he was treating me for TMJ - it was the first time I had ever even heard of this and the first time I ever noticed I was always clenching my jaw so hard! - after about 3 visits this so called doctor sent me to my current allergist. They tested me and found I had severe pollen allergies so I started the allergy shots which have fixed the infections and given me new energy and life, but it still didn't fix the other problems with msg. Fortunately, I figured this out on my own.
I wasn't sure if MSG was affecting me but my then boyfriend/now husband said it bothered him, so I tried avoiding it.
He also figured out it's in hydrolized veg protiens, so I avoided these also. But I still had all these symptoms. I suffered insomnia, tossing turning, muscle twitching/spasms, arthitis, SEVERE constipation, headaches, nervousness, rapid or pounding heart and more I forget, it was like I was old and I was only in my late 20's. I was so tired and so tense I thought I would die. I eventually found this website - I didn't see the "hidden names" for msg until a few month later - but I had so many of the symptoms listed on the home page - I was thinking there is something to this.
I thought I was cutting it out of my diet, but I still had symptoms. Well, when I finally found the hidden names for msg list - I had hit the jackpot!!!!!! But I became so distraught, not knowing what to eat, not wanting to eat ever again, frustrated because so many products I would eat would turn out to be unsafe. But I noticed when I avoided all these products, both my husband and I felt better. I was also so furious with the food industry, and the government, and just couldn't believe it, as I have read on this website many others of you have felt this way also.

Unfortunately, we just didn't have total control over our foods. We both ate out alot, and it never occurred to me that things like butter and cream could have msg additives! I was still hypoglycemic all the time, but at least I was sleeping more, yet we were always tired. Then I also found Dr. Blaylock's book - which really helped me to understand what was happening in our bodies when we ingest msg and that we can control this!

We had to STOP eating out. Fortunately I was able to quit my job and didn't go back to work when we moved. We would have less money, so eating out was no longer an option - and I was ready to cook everything from scratch, but we still got msg again and again by accident. I finally started reading EVERY label for every ingredient and I memorized that hidden names list. I learned it was in the butter, and even the yogurt we were eating. It was sprayed on the beef and hamburger we bought, my favorite salad dressing, teriyaki sauce, soy sauce (even though the label doesn't list anything), even cornstarch, powdered sugar, flour, etc etc etc etc. And now, a year later, after many a trial and error, we are so much wiser and we are both feeling sooooo much better, it's unreal. We still get accidental msg poisoning now and then, but we don't go hypoglycemic unless we've gotten msg, and we can usually pinpoint where we went wrong pretty easily. Jeez, what a nightmare we went through. It would cause us to argue, and be so irritable in addition to all the other problems.

My husband grew up with HORRIBLE diarrhea probably 3-5 times a week his whole life, and now he never gets it. He also doesn't feel hypoglycemic anymore and his cycling has dramatically improved because his muscles can recover properly.

Now I just try to preach the dangers to my family and friends and anyone that will listen! - my sister got pregnant very young and had my niece. I didn't make the msg connection until my niece was about 2. She was staying home with my sister that summer, and not going to daycare or the babysitter. I had just read the Excitotoxin's book by Dr. Blaylock and gave my sister a very very serious speach about this - and how she needed to elimate it from my niece's diet immediately. Thankfully, she listened, and she later told me that before she cut it out, everyday all Kaylee wanted to eat was Top Ramen, so she let her eat it. It was her favorite. Then my niece, Kaylee, would start bouncing off the walls and become a horrible behavior problem. She became mean and wild. She would not take a nap. My sister didn't know how she would deal with this everyday for the rest of the summer. But, as soon as my sister cut out all obvious sources of msg, Kaylee's behavior improved dramatically, right away. That was enough proof for my sister. I know she doesn't follow a total elimination approach like we do, but at least she tries to cut back and I still preach to her. It's a real challenge for everyone.

I just have to thank Dr. Blaylock, and Debbie A., and all the others dedicated to the fight of eliminating this stuff from our diets and educating us about how to cope with this horrible problem. It honestly saved our lives, I don't know where I'd be if I didn't have their assistance in figuring this out.
Judy T
Posted on Wednesday, July 11, 2001 - 7:17 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Melissa, Amen. We all feel like you do.
Posted on Wednesday, July 11, 2001 - 12:57 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Melissa, I got Debby A's book right after I found the site and all those hidden food sources of MSG were in there, like the powdered sugar. It's even in toothpaste and in some of the mascara I was using. thank God she did the footwork for us!
Your story could be mine. My husband is not very sensitive to MSG, but when he eats away from home, he says he gets brain fog and is glad to eat what I make when he's here.
Posted on Wednesday, July 11, 2001 - 1:30 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Yes, I feel guilty, I didn't order Debby's book until very recently. I was slow to order it because I was trying to save money, and I had figured out quite a lot (I thought) on my own - I had read the Excitoxin's book by Dr. Blaylock, and read lots on this website, but realize I really should have gotten it sooner.
I could have saved myself many agonizing msg incidents for both my husband and myself if I had only gotten Debby's book sooner!! Live and learn.
Deb A.
Posted on Thursday, July 12, 2001 - 10:44 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

We wish we could make the book cheaper for everyone. We're working on trying to find a printer who will print it more inexpensively and not demand we order at least 3,000 books before we get a price break. Actually, Barnes and Noble decided the retail price on their own of $22.00. And of course we make very little on the wholesale orders. With profits from the book, we are able to give away many copies to those who cannot afford them , and doctors and other people related to the issue....not to mention pay for this site, and the many long distance phone calls we return. We've been told the $19 we charge is a fair price according to everyone we have had price it. But then, it's hard to convince people who don't know us or can't really see the book that it is worth spending their hard earned money on. I can't blame them, and then, too, many people are afraid to order over the Net. What I need to do is post some e mail from those who would be willing to endorse the book who have ordered, it right on our site. Melissa, it's perfectly understandable that you were reticent.
Deb A.
Posted on Thursday, July 12, 2001 - 11:00 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

I forgot to mention that many people are calling and ordering 5 to 10 books at a time in order to get them to friends and family and doctors. One woman, Elaine F. (turns out her uncle was my dad's construction boss MANY years ago), has ordered 10 books several different times and we give her a good price break. She called a couple days ago at 4:30 am (forgot the time difference) just to tell me how much better their lives are now and to tell me how many people they have sent the books to. She is getting it to congressmen, doctors and friends "all over this country!". Amazing how that little cookbook that we originally wrote for our own family and friends is all over the world. An activist in the U.K. has it, and just got my permission to "pinch", as she calls it, several of my recipes and some of the info to put in a book she is writing for her publisher. It's so good to know the word is spreading. This gal(mother of an autistic child and who has just made the MSG connection) has now been on a popular talk show, 2 or 3 radio shows, has been asked to do a cooking sequence for a video, and addressed the national Autistic group over there. So take heart, good things happen when we educate ourselves and then open our mouths to others with a touch of courage. It doesn't matter what some might think. There will always be those who are more close minded. But for everyone like that, there are more who do listen. Keep doing what you are doing, everyone! We are making a dent!
Posted on Friday, July 13, 2001 - 2:04 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Dear Deb,

I ordered a few of your cook books for myself and a couple of friends. My son also got one and told me recently he has never opened the book. Anyhow I will be ordering a couple very soon. One for the local hospital in my neighborhood. They swear up and down that no MSG is in the hospital meals. Right! So they will get a copy of your book. Maybe it will do some good.

Also the lung specialist that I am not going to will get my copy and I will need to replace it. I am reading the beginning again at your recent suggestion. There is so much information in there that one needs to almost know the book by heart. The information is a tremendous help. I first made the connect when I read "In Bad Taste" like you I was trying to help my son with his migraine headaches. The doctors said they could do nothing to help him.

Keep up all of your good work. Your book is worth ten times what the current cost is.
Deb A.
Posted on Friday, July 13, 2001 - 3:29 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)


I'm so glad to hear that people like you are still "slinging it out" with doctors and hospitals, etc. If we all do more of that, we will certainly make more progress. If we get the attention of just one doctor, it will effect so many other people. They really are starting to listen. So many times I hear from people who have gotten the book and have regained their health, but when I ask them if they have told their doctor or specialist about their discovery of the MSG connection, many don't bother. Sure, there will be the hard head docs who will write us off as "nuts" or extreme, but if enough of us start to complain to them about MSG, the word will travel among them eventually.
And thanks for the good word about the book! :)
Posted on Friday, July 13, 2001 - 10:57 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

I normally don't consider myself a cynic, but it occurs to me that the medical establishment would be very threatened by information about exitotoxins. If masses of people were to make these food changes, many of those doctors would be put out of business. But of course we should be making an effort to get the word out to doctors. I plan to meet with my doctor (the one who prescribed the antidepressant) and share my story with her as soon as I have a little more confidence how I'm doing with it all. I can just picture the condescending response, but I'll give it a try anyway.
Beth E.
Posted on Saturday, July 14, 2001 - 6:08 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Deb, Your book is a godsend and the price is no problem - sure beats spending hundreds of dollars on doctors' bills and prescriptions! I also want to say thanks again publicly this time for the speedy delivery after I tired of waiting for the copy to come from Healthpress. I'm so glad now that I have two copies. One's my lending copy and the other doesn't leave my house (although I'm often tempted because there are so many people who need to read it - they get put on a waiting list now)! My son's pediatrician has borrowed it and has told me that she frequently tells parents now to consider diet when confronted with unexplainable symptoms.

And Carole, I have been fortunate to know some extremely caring doctors who really do have patients' best interests at heart and by all means want this information to be spread. Of course, I'm sure some are in the medical profession purely for financial reasons, and they might indeed feel threatened by widespread knowledge of excitotoxin poisoning. However, I'm optimistic that the word is going to get out sooner or later in spite of the massive glutamate lobby and/or uncaring doctors.
Deb A.
Posted on Saturday, July 14, 2001 - 11:15 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Beth, thanks for the kind words about the book. And thank you for spreading the word about MSG! Yes, there are good people who do care and of course the occasional self important know-it-all who will not give us the respect we should be getting. I've met all kinds and I'm sure most of us here have. :)

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