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Misdiagnosed as celiac for14 years - ...

Battling the MSG Myth » How You Made the MSG Connection » Misdiagnosed as celiac for14 years - long « Previous Next »

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Posted on Monday, June 27, 2005 - 7:53 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

This is my first post and you have no idea how relieved I am to find this site. Just a month ago I was tested genetically to "prove" I had celiac as my reactions to gluten were too severe to do a challenge so I was given the diagnosis by default. Now with the genetic typing, my gastro said she could positively diagnose me .... and the results came back with a less than .5% change I could have celiac. Now what, I thought.

A friend of mine wanted to know the other names for MSG as I knew it caused me severe problems - and I found this sight. Now I am wondering if it has been MSG all along.

I did have classic celiac symptoms. weight loss, foul stools, abdominal pain - with scads of tests to find out what it wasn't. When my doc put me gluten free - I got better. So - it was assumed I had celiac after becoming malnourished. Four years later I had an anaphylactic response to gluten - or so I thought. Convulsions. And it was still considered celiac. Then I noticed MSG gave me the same reaction. Reading here, I find the unsolvable answer to my mysterious gall bladder problems and bornholmes diagnosis. My health is heading down hill right now and no one knows why - except I DON'T have celiac - according to the test. Headaches, chills, feelings like my throat is swelling and I'm gonna choke, being tired all the time. Difficult time fighting off infections, but never any "culprit" other than low B-12 being found. I am going to order the book. I look at the "gluten free" food I am eating and realize how much msg is involved. Heck - even my antibiotics are in gelatin capsules. (I emptied my tonight's dose into mashed up banana. I've been using a crockpot lately. I LOVE parmesean cheese. I've been eating way more veggies - especially baby carrots cuz they are "easy." <sigh>

I'm hoping I've found an answer here. I've eagerly read posts on this site and links to others. I need the book to see what I CAN safely eat to see if I can get myself well. I NEED to be well. I am 53 and have care of my 3 year old granddaughter and 8 year old grandson since their mother died this year. Oh, did I mention lots of stress???

You guys seem like a great bunch - and thanks Deb for your work and your story. I'm gonna post back to the celiac list I am on to let them know about this - some of the others there are "atypical" celiacs - and I wonder about MSG for them.
Deb A.
Posted on Tuesday, June 28, 2005 - 8:47 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

SO glad you found us! Yes, you have no idea as to the number of people who have been diagosed with celia's disease who later found out the culprit to be MSG. In fact, I am working with a local person right now who was down to eating brown rice and water because of all the allergy testing and elimination diets she had been forced to try for the last 1 1/2 years. A mutual friend told her to call me and I am so happy she did...she was at the end of her rope with 3 small children to care for. She has been MSG free for 2 weeks and she just called and tearfully told me that she has never felt this good in her entire life. She said that when she was eating just the rice, she had told her doctor that she suspected that she was now getting allergic to it also, and she was terrified. I asked if she was taking supplements and gelatin capsules and she answered..."100's of them!" It wasn't the brown rice, it was the capsules, fillers and binders, etc., all full of glutamate. I suspect that a large number of people diagnosed with celiac disease are actually glutamate toxic. And the wheat gluten, which is high in glutamate just helps to tip the scales on a diet already high in MSG and free glutamate substances (not to mention that a lot of baked goods contain hidden sources of glutamate and l-cysteine so when you avoided them, you did feel somewhat better). Please keep us posted as to your progress!

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