| Author |
Message |
MEMorrisNJ
| | Posted on Wednesday, October 25, 2000 - 5:41 pm: |   |
"MEMorrisNJ" MEMorrisNJ@worldnet.att.net Morristown, New Jersey |
Tom Fernstrom
| | Posted on Thursday, October 26, 2000 - 7:37 am: |   |
Tom Fernstrom Tfernstrom@aol.com Cary, Illinois |
Roy Piwovar
| | Posted on Thursday, October 26, 2000 - 10:21 am: |   |
Roy Piwovar roipolloi@hotmail.com Philadelphia, Pennsylvania |
Carol H
| | Posted on Thursday, October 26, 2000 - 3:25 pm: |   |
Carol Hoernlein thesweep@hotmail.com Tenafly, New Jersey |
danettajamal
| | Posted on Wednesday, November 01, 2000 - 5:50 am: |   |
danettajamal2000@yahoo.com danetta jamal |
Vicki Ketch
| | Posted on Thursday, November 02, 2000 - 11:16 am: |   |
Vicki Ketch TVKETCH@aol.com Stillwater, Oklahoma |
Evelyn Hoover
| | Posted on Tuesday, December 05, 2000 - 1:19 pm: |   |
Evelyn Hoover Northfield, MN jande@rconnect.com |
Donna L
| | Posted on Tuesday, December 05, 2000 - 6:57 pm: |   |
Donna Long St.Paul, MN donnallong@cs.com |
Judy
| | Posted on Wednesday, December 06, 2000 - 8:32 am: |   |
Judy Thompson: Winnemucca and Reno, Nevada: winnetoreno@hotmail.com |
asharpvo
| | Posted on Thursday, December 14, 2000 - 5:15 am: |   |
Ben Sharp, Nashville, Tn |
asharpvol
| | Posted on Thursday, December 14, 2000 - 5:17 am: |   |
Ben Sharp, Nashville, Tn asharpvol@home.com |
Candy Berry
| | Posted on Friday, December 15, 2000 - 7:33 pm: |   |
Candy Berry, Sydney, Australia t1bouch1na@yahoo.com |
Connie
| | Posted on Saturday, December 16, 2000 - 6:52 am: |   |
Pasadena, Md DuckInntheH2O@aol.com |
Deb S
| | Posted on Wednesday, December 20, 2000 - 5:47 pm: |   |
Eugene, OR debs@castleisp.com |
Laurie M
| | Posted on Tuesday, January 02, 2001 - 8:06 am: |   |
Laurie Magee Skagway, Alaska laurie-b@usa.net |
Ruth
| | Posted on Friday, January 05, 2001 - 5:35 pm: |   |
Ruth Zeger Houston, Texas dazeger@flash.net Deb and Mike A., I just found a xerox from the NoMSG website that I downloaded last Aug. with more than 2 pages of links to MSG information, provided by MEMorris NJ. Let me know if you can use it, though maybe you already have it. I am terrible with computers but could fax or mail it to you. |
shelly
| | Posted on Monday, January 29, 2001 - 2:04 pm: |   |
My e-mail address is downunderyards@aol.com Thanks again, Shelly |
Gerry Bush
| | Posted on Monday, January 29, 2001 - 6:20 pm: |   |
My new e-mail address is gerry.bush@home.com No more aol, just fast digital cable internet access. Deb A., could you please ask Mike to remove my old address. Thanks. |
Roy Piwovar
| | Posted on Tuesday, February 13, 2001 - 6:13 am: |   |
Dr. Walsh's address and phone number are listed on his web site: http://www.salu.net/sites/a/allergypub/ |
s.o.s
| | Posted on Monday, April 09, 2001 - 9:50 pm: |   |
s.o.s@justice.com |
mensa
| | Posted on Monday, April 30, 2001 - 5:48 pm: |   |
Mary Cracraft Holland, Michigan |
Oliver H
| | Posted on Saturday, May 26, 2001 - 2:19 pm: |   |
Oliver H ------------------ oliverjh@email.com ------------------ Cambridge, UK Be great to hear from anyone else trying to avoid msg. :o) |
Kathy
| | Posted on Thursday, July 05, 2001 - 5:42 pm: |   |
Kathy Kehoe, relicwidow@yahoo.com, Strasburg, VA I am reading The Taste That Kills and I am getting too fanatical to talk to my friends and co-workers, LOL. I need you guys! |
Julie Peterson
| | Posted on Monday, July 23, 2001 - 12:21 pm: |   |
Julie Peterson Salt Lake City Utah bdjap@msn.com |
Shirley
| | Posted on Friday, August 31, 2001 - 10:25 am: |   |
witz7@juno.com Queens, new york |
Tracy
| | Posted on Thursday, September 06, 2001 - 8:52 am: |   |
Tracy Reilly Ft. Lauderdale, Florida treilly90@hotmail.com |
Cindy Fullerton
| | Posted on Saturday, April 21, 2001 - 9:39 pm: |   |
cdefmom@yahoo.com Cindy Fullerton Redmond, Washington USA In the process of suspecting MSG is a problem for me. Thank you to all of you for sharing your information. |
Mensa
| | Posted on Sunday, April 29, 2001 - 5:59 am: |   |
mensa50@earthlink.net Mary Cracraft Holland, MI USA In the process of suspecting MSG is a problem for me. Thank you to all of you for sharing your information. |
Marcia
| | Posted on Wednesday, May 09, 2001 - 3:49 pm: |   |
Marcia St. John, Indiana biglar@tsrcom.com |
amh
| | Posted on Thursday, June 21, 2001 - 1:41 pm: |   |
amh219@aol.com Ann NYC NY Have been MSG sensitive for more than forty years. Just had my worst episode which brought me to the emergency room and resulted in a five day hospital stay. Than an additional five or more days at home. I was so frightened because I did not know what would be safe for me to eat. |
Don Campbell
| | Posted on Tuesday, October 09, 2001 - 8:09 pm: |   |
Don Campbell - Datona Beach, Florida USA. donscampin@aol.com If anyone is interested in pursuing a group lawsuit against a food company please email me. I am compiling the evidence that they have known what processed free glutamates do to us for at least the last decade, and have been covering it up, and have control over the EPA. |
Roy Piwovar
| | Posted on Thursday, October 11, 2001 - 3:19 am: |   |
Roy Piwovar Philadelphia, PA vicinity roipolloi@hotmail.com |
Anonymous
| | Posted on Saturday, December 08, 2001 - 1:52 pm: |   |
i'd like to find someone to email re: msg issues, in my area of spokane, WA. includes the whole pacific northwest. thanks dcook60@yahoo.com |
JJ
| | Posted on Sunday, February 03, 2002 - 4:30 am: |   |
jjmartin@arkansas.net |
Gerry Bush
| | Posted on Sunday, February 03, 2002 - 6:15 pm: |   |
My email address has changed to: gerrybush@cox.net |
Ruth
| | Posted on Monday, February 04, 2002 - 5:33 am: |   |
I have a new email address. rezeger@prodigy.net |
dianne
| | Posted on Saturday, February 09, 2002 - 12:45 pm: |   |
i'd still like to find someone to talk with in my spokane, WA area of the inland northwest. posted as "anonymous" before. (brain doesn't know what it is doing anymore...) |
Dawn Livingston
| | Posted on Wednesday, February 13, 2002 - 9:04 am: |   |
Dawn Livingston DawnLives@aol.com Royal Oak, Michigan |
Sarah R
| | Posted on Thursday, February 21, 2002 - 5:49 am: |   |
I'm new to all of this and the word "overwhelmed" is not even big enough for all this new information I hear and read about everyday. I have put myself in a holding pattern of trying new things until I get Deb A.'s book. Have read "In Bad Taste" and "The Feeling Good Handbook" already. This site is my favorite. Thanks and I wish everyone GOOD LUCK with this crusade. Sarah M Rabideaux zelda_1959@yahoo.com Frazee MN |
Deb A.
| | Posted on Thursday, February 21, 2002 - 10:33 am: |   |
Thanks Sarah. If you ordered from us, your book should get there soon. Keep reading and learning. It WILL get easier. We were all overwhelmed! |
Sarah R
| | Posted on Tuesday, March 12, 2002 - 9:55 am: |   |
Received your book and love it. Already added tabs to find things faster. And it's highlighted more than my textbook from college. Had a physical today and going in tomorrow for the blood work. The doctor would ask me things like: Are you eating yougurt and taking vitamins. She was shocked, but supportive, when I would explain the reason I have stopped using or eating many things until I find MSG-free ones. I know I live in a rural area but it has been impossible to find some things that are MSG-Free. Think I will have to take a day off from work and go to the nearest big City and do some shopping/looking. Once I find a source I will be ok, just need to find it first. I have been sharing your information with family, friends and co-workers. Keep up the mission and remember that we are all thankful for what you have done. |
Vicky Smith
| | Posted on Monday, June 10, 2002 - 1:00 pm: |   |
veemail@fidmail.com Niangua, Mo Problems with msg . What can I do other than try to avoid everything? |
Deb A.
| | Posted on Monday, June 10, 2002 - 2:14 pm: |   |
Sarah R, I missed your last posting back on March 12th. Sorry! Hope you have been doing well since then. Vicki, the best remedy so far is MSG avoidance. It may seem very challenging at first, but take it one day at a time. I always tell people that they need to give themselves at least 6 months to a year to really get a handle on this important lifestyle change...and not to beat themselves up if they make mistakes. We all had to learn the hard way, but it is so worthwhile. If you get a poisoning, drink lots of water...some like to add some fresh (not bottled) lemon juice. Some take 1/4 t. of powdered taurine from Beyond-a-Century.com, some swear by taking daily, CoQ10. I take the pure powder from the same company..$50.00 for 3 to 4 months supply. I always have organic peppermint tea on hand and often make fresh ginger tea when I am reacting. Just peel and slice a few circles and put it in a little pot of water. Bring to boil and turn down to simmer...simmer on lowest heat for5 to 8 minutes. If too strong, add water. It is good sweetened and good hot or cold....good with lemon, too. Some people feel better if they exercise after ingesting MSG. So far, all we can do is try to eat wholesome, fresh foods. |
Pamela
| | Posted on Tuesday, July 09, 2002 - 11:43 am: |   |
I am excited about all that I have read! I thought I was all alone! We have been avoiding all the names and stuff of msg for about eight months! I am thrilled to find people who want to change their lives! Family give us the worst time and it has been very lonely here! BUT I FEEL SO MUCH BETTER IT IS WORTH THE LONELINESS!! BUT NOW I AM NOT ALONE! THANKS FOR BEING HERE! PAMELA |
Pamela
| | Posted on Tuesday, July 09, 2002 - 12:03 pm: |   |
I forgot to ask about pectin, are there safe forms of it for jam making? if not can you share a way to make jam that would be yummy for us jam users???? I make homemade from the frozen fruit and tapioca pearls, just wondering if there is something easier!!!! thanks alot! |
Deb A.
| | Posted on Tuesday, July 09, 2002 - 2:13 pm: |   |
Hi Pamela. Glad you have found us! You are definitely not alone, and I know what you mean about family...but in time, as they develop symptoms they often come around and ask for help. I have a couple recipes for jam in the book, but I will let you know how I make mine. Most pectin products contain some form of glutamate, and pectin itself has some, too. I just measure my chopped, pureed or mashed fruit and add the same amount of sugar and stir until dissolved for frozen jam. I don't even puree raspberries, since just stirring them breaks them up. I add the juice of 1 lemon, too. It sets up fine. For more watery fruits or fruits that don't have much natural pectin (like strawberies), I process a green apple and add that, also. For cooked jam, I do the same thing, but add ingredients to a large pot, without any pectin. Adding a few slivers of lemon with the pith helps for fruits low in pectin, but rarely have I done that. Bring to a slow boil and cook about 25 to 35 minutes, or until it coats the back of a metal spoon and forms a drop that won't fall easily. I bottle and process 15 minutes in a water bath for pints. I would love your recipe for jam using the tapeoca pearls. |
Deb A.
| | Posted on Tuesday, July 09, 2002 - 2:14 pm: |   |
...that's "tapioca"..sorry. |
Laurie M
| | Posted on Tuesday, July 09, 2002 - 9:10 pm: |   |
I use low methoxyl pectin that is made from oranges. You don't have to use sugar. I react to regular pectin but ilove this stuff. I will see if i can find the brand name. I can make jam with honey this way. |
Deb A.
| | Posted on Wednesday, July 10, 2002 - 7:49 am: |   |
Great to hear, but does the pectin contain other fillers? I would love to find some here if it doesn't. Is it sold in health food stores? |
Laurie M
| | Posted on Thursday, July 11, 2002 - 7:39 am: |   |
Here is the name and a list of ingredients. I bet Carol could offer info about them. Pomona's Universal pectin--sold in health food stores!! ingredients: low methoxyl citrus pectin and separately packed monocalcium phosphate to assist gelling of low calcium fruits. no sugar or preservatives. Works with cooked oe uncooked jams |
Michelle Sanders
| | Posted on Wednesday, August 28, 2002 - 2:58 pm: |   |
Wow! I knew a lot of people had reactions to MSG but I just found this website. I'm only 21, but I've been avoiding MSG since I was 16. I started getting migraines at age 12. I've found the easiest way to stay away from MSG as an additive is to buy the bulk of our food items at the health food store. I don't think I'm sensitive to naturally occurring glutamate, just the added MSG. I've kinda crunchy anyway, I breastfeed my baby, cloth diaper, use non-chemical homemade cleaners and eat Organic produce whenever possible. Most people I know don't know what Organic or MSG is!! Michelle socrunchy@hotmail.com Bedford, Indiana USA |
Deb A.
| | Posted on Thursday, August 29, 2002 - 7:37 am: |   |
You are way ahead of the game. Keep up the great job and stay healthy, Michelle! |
Tom Fernstrom
| | Posted on Friday, August 30, 2002 - 6:36 am: |   |
Michelle, Congratulations on linking the MSG to your symptoms. I too had linked MSG to my A-Fib early on and avoided the obvious products that contained it. It wasn't until I found the NOMSG site and this site that I learned why I was having the same symptoms even with avoidance. I was unaware of what the food industry had done over the years to poison the whole food supply. Other NOMSGers, I apologize for not commenting lately on various posts -- I have been reading them when time permits, but have had family problems that needed my attention. My Uncle, who I have mentioned before, recently passed away. He went into the hospital for hip & back pain (old arthritis issues) and never came out. The original pain medications given to him caused him not to breathe properly and he developed pneumonia. From there he experienced repeated episodes of A-Fib (probably from the hospital foods -- even though I warned his dietician & doctor about his sensitivity to MSG). Eventually he developed what I would refer to as irritable bowl syndrome. He had episodes of diarrhea so frequently that he lost 45 pounds off his 180 frame and eventually suffered a massive stroke and died. I felt so helpless because he was a Christian Brother (a Catholic teaching order) and he wanted to be near his fellow Brothers and students. So even though I attempted to bring him home so I could monitor his health, I could not convince him. I also have some Resort property down in the Dominican Republic that has required a lot of my attention lately because I am on the Boards of different companies and associations involved. It reminds me though that in the Dominican, if you are hospitalized, care does not include feeding you. Your family must bring you food every day. If you don't have family, there are usually religious organizations that step in and provide. But the Hospital does not! Maybe that would be a good policy in the US and thus more people would survive hospital stays. Sorry if I sound bitter. |
Judy T
| | Posted on Friday, August 30, 2002 - 8:10 am: |   |
Tom: In reply (oops I shouldn't use this e-mail category heading, but...)... anyway, was in the hospital a few weeks ago with a reaction; gave the hospital a sheet of foods I could and could not eat. What did I get? Broth, flavored orange peko tea and oj from concentrate! Didn't eat naturally until I got food I could eat. Grrrrr. |
Roy Piwovar
| | Posted on Friday, August 30, 2002 - 8:59 am: |   |
Tom, The last time I was in the hospital they brought me my food, I handed them a card listing the forms of MSG, and they came back and told me there wasn't anything on my tray I could eat. It's sad that people go into the hospital to get better and are given things that make them worse. I wish we could send every hospital in the county an MSG brochure. |
Howard M
| | Posted on Friday, August 30, 2002 - 5:49 pm: |   |
Oh boy....I wish I could post this in a real special place, but it needs to be said....Thanks Tom for the supplement list. It really works...My reactions fell off to slight things. (CoQ10-300mg, Taurine, Magnesium Orotate, B6-25mg Wampole Multi-Adult (50+)... Wow!! My reactions became much less severe.... And then....Because you people out on this board just never quit....I kept looking as well and so I kept looking, and looking, and reading...and.....and found...onions...(natural sulphites) and (grapefruit....still don't understand) bang and the reactions stopped.... Wow Thanks Tom, ( I owe you one or three) Deb, I know you, and love ya....you have no idea how many people you are affecting.....in the last week, I turned at least three in your direction... Carol, I have most of an engineering degree, so I think I could yak with ya Roy....You are just something incredible...I aren't bad with research, ....but you are just great...... ::blinks:: You have given me my life back....Bravo....Brava! Bravissima! ::winks:: Tom....give me a call....::winks again:: |
Howard M
| | Posted on Saturday, August 31, 2002 - 5:52 am: |   |
oh.. should add a Linguistics degree and Music as well... Thanks again... |
Carol H
| | Posted on Saturday, August 31, 2002 - 6:36 am: |   |
Howard, you made my day! |
Roy Piwovar
| | Posted on Saturday, August 31, 2002 - 3:08 pm: |   |
Thanks Howard. By the way, grapefruit can cause problems when taking certain medications, as listed in the article linked below: http://www.consumer-health.com/services/cons_take10.htm |
Howard M
| | Posted on Sunday, September 01, 2002 - 6:48 am: |   |
(no sooner said than done I spose) Can only be: Whole wheat bread made with "live" yeast cake (obtained from my mother) and eaten every other day, or Deb's shampoo (L'oriel Color Vive) which I began using every day last week instead of alternating it with a Health Food store Cake shampoo. Or B6. Any Ideas? |
Anonymous
| | Posted on Sunday, September 01, 2002 - 9:52 pm: |   |
I was just reading today's news on the ATT site under the Health heading. It lists some foods and additives that cause headaches. It lists MSG, but also states that yeast extracts contain tyramine. Another item it mentions is histamine intolerance which can be based on a deficiency of the enzyme diamine oxidase. Can someone help me understand this statement? |
Roy Piwovar
| | Posted on Monday, September 02, 2002 - 2:56 am: |   |
Anonymous, The link below mentions abstaining from alcohol as being helpful in treating diamine oxidase deficiency (look under "histamine"): http://www.frenchalz.com/Apps/Library/default.asp?ID=246 |
Deb A.
| | Posted on Monday, September 02, 2002 - 8:36 am: |   |
Thanks Howard! Just got back from taking our granddaughter back home in Oregon, and am now just catching up reading the last posts. I know how frustrating it is to try and track down the culprit when you have a reaction out of the blue. What is more frustrating is using a product that works and then they go and change the formula. That is happening a lot with shampoos and cosmetics, I notice....lots of soy and milk proteins are now being added. I question my shampoos all the time, and now switich them often, looking for that best one. I have also just started rinsing my hair with 1 T. of organic apple cider vinegar mixed with a cup of warm water...keep them in the shower all the time. I don't get any itchy scalp now. But if anyone knows of a great shampoo, please pass the info along here! Howard, keeping a food journal will help during times when you are puzzled with what is causing problems. Write everything down, including how you feel each morning and night...circling the suspicous items...soon you can see a pattern. keep well! |
Deb A.
| | Posted on Monday, September 02, 2002 - 8:38 am: |   |
Judy T., what happened? Did you know what caused such a severe reaction? Hope you are back to good health. |
Judy T
| | Posted on Monday, September 02, 2002 - 1:14 pm: |   |
Deb A: Posted my hospitalization a few weeks back...what happened were heart palpitations and bad chest pains in the middle of the night. While Tony got dressed I drove myself one block to the hospital. When he arrived, in conversation he said, "I wonder if that pork I bought at Albertson's was injected"!!@##$#@! Sure was. They kept me overnight, but as they say, all is for a reason. Since I have passed a treadmill test with great good results and have a meeting with the nutritionist to discuss glutamate toxicity. She wants to learn and boy do I have a pile of materials for her. I have a library of hard copy stuff from all of you, and catalogued so I can generally find what I want. Thanks you all. |
Howard M
| | Posted on Monday, September 02, 2002 - 3:58 pm: |   |
Thanks Deb Last week my barber mumbled something about psoriasis, so I went home and began using Vive every day. This probably wasn't smart either and began the "ramping up" toward a reaction which the blue green algae finished off big time. I used to use Vive every other day, alternated with a cake "shampoo" from the health food store..Something with Lemon, and another with Rhubarb and a bunch of natural stuff, so your suggestion about Organic Apple Cider Vinegar and the end of the itching is a really good idea...Linda is upstairs making a batch as we speak.. |
Laurie M
| | Posted on Monday, September 02, 2002 - 7:02 pm: |   |
I use nature's gate shampoo. I alternate the different kinds and stay away from the variations with hydrolised protein. It works quite well from me and is mainly plant based. |
Le
| | Posted on Wednesday, September 04, 2002 - 5:15 am: |   |
I use Dove sensitive soap to wash my hair and Nature's Gate rainwater herbal tea tree oil conditioner. My hair is very dry from coloring for so many years. I stopped coloring when I made the connection. I would get very sick for a week. I didn't like seeing the roots and all the gray hair so last week I frosted it. Because a cap is used it isn't absorbed into your skin. I opened the windows, turned on fans and even mixed the solution and spent some of the time outside. I didn't use the shampoo and conditioner they supplied. The only reaction I had was being very thirsty for the rest of the day and being congested the next morning. The frost does help hide the gray and blend the roots with the old color. This may be an option for anyone out there having a hard time seeing the gray. |
Deb A.
| | Posted on Wednesday, September 04, 2002 - 9:39 am: |   |
Howard, be sure to rinse out the vinegar after rubbing it through your scalp and hair...sorry, forgot to mention that...don't want to smell like vinegar all day!!! |
Deb A.
| | Posted on Wednesday, September 04, 2002 - 9:42 am: |   |
Le, that is what I do from time to time...no gray yet, but sure it won't be long! As for your reaction, that is what I do, too...it's a sulfite reaction...thirst and congestion. |
Howard M
| | Posted on Wednesday, September 04, 2002 - 5:32 pm: |   |
Thanks Laurie, Deb, Le Me? I don't care about the grey anymore...And I wash the Vinegar out ...This morning I looked in the shower and found a whole lot more "vinegar" rinse than yesterday in the open container. Linda said...."Well, you are supposed to use the whole cup with the tablespoon of Vinegar" I thought you used just a handful to rinse....so I left most of it sitting there for the next few days.... So of course the rather large container fills up with water, causing me to question why Linda hasn't found a squeeze container for our brand new "rinse" Umm..Deb...this is really silly...but do you use a whole cup of water and Tablespoon every day for a rinse, or can I bottle it and make it last... Umm...my hair is really kinda short.... |
Deb A.
| | Posted on Thursday, September 05, 2002 - 8:49 am: |   |
Ha Ha! Sure, diluting and bottling it will work great. I'm just too lazy...I just set the bottle on the shower floor with a plastic cup turned upside down over the top of it. I quesstimate the amount of vinegar I use. |
Clarissa
| | Posted on Sunday, January 19, 2003 - 4:07 pm: |   |
HI EVERYBODY,My email address is clarissa363 @AOL.COM |
Robert Cupp
| | Posted on Thursday, April 03, 2003 - 4:46 am: |   |
Robert Cupp Marceline, MO. bcchev01@shighway.com Walt Disneys Boy Hood Town |
Jackye
| | Posted on Wednesday, June 04, 2003 - 9:11 pm: |   |
Jackye Ward Ada, OK jward@vvrh.com I've completed my first 4 months! In little Ada(population 18,000), there are 2 of us... It has helped. Bob and his wife Debbie are plugged into this site as well. I've shared the site with everyone I know. Great support, enightening information. You all, plus my family, keep me going! Thank you Debby and Mike for providing the service. |
Deb A.
| | Posted on Monday, June 09, 2003 - 3:16 pm: |   |
People like you keep us going! |
Karla
| | Posted on Friday, June 13, 2003 - 11:49 am: |   |
Hello everyone, I'm struggling with not eating msg or additives/persvatives and i feel that starting a local support group in my area would be a great benefit. Anyone Intersted? I'm in Tulsa Oklahoma! |
karla
| | Posted on Friday, June 13, 2003 - 11:52 am: |   |
This is Karla again from Tulsa, OK. My e-mail address is trakar34@yahoo.com Thanks! |
Carla
| | Posted on Friday, July 11, 2003 - 10:03 am: |   |
New to the board - I wonder if anyone has found organic produce which does not use AuxiGro? I plan on calling several and will list the results. |
Carla
| | Posted on Friday, July 11, 2003 - 10:05 am: |   |
Forgot to add the following - my email address Wascross@comcast.net - from St. Clair Shores, Michigan Thanks! |
Deb S
| | Posted on Saturday, July 12, 2003 - 10:04 pm: |   |
I posted up near the top but have since moved and have a new email address: Deb S Portland dslater@west-connect.com |
marian brown
| | Posted on Friday, September 05, 2003 - 7:44 pm: |   |
I'd like to connect with MSG sensitive people in southern Ontario, Canada. |
Lisa Leaver
| | Posted on Saturday, September 06, 2003 - 4:02 am: |   |
leisha@computron.net Old victim Young Discoverer. |
Steve Woodward
| | Posted on Tuesday, September 16, 2003 - 9:24 am: |   |
Any other people on here from over the pond? steve.woodward@ntlworld.com Steve in Britain |
Fran
| | Posted on Tuesday, September 16, 2003 - 11:00 am: |   |
Same side as you Steve - but in Scotland fross@ecosse.net |
Steve Woodward
| | Posted on Tuesday, September 16, 2003 - 11:45 am: |   |
Hi Fran, so how do you suffer from mcMSG then |
Fran
| | Posted on Tuesday, September 16, 2003 - 12:56 pm: |   |
I posted in your other thread. It gives me Atrial Fibrillation, AF - a heart arrhythmia - and seizures. I also had migraines and fibromylagia.... You said hives and irregular heart rhythm - AF is desribed as an irregular-irregular rhythm. Any other symptoms? |
Steve Woodward
| | Posted on Tuesday, September 16, 2003 - 1:19 pm: |   |
Hi Fran, I didn't mention hives, what it gives me are ventricular ectopies what they call PVCs in the US, a sort of a missed heart beat followed by a stronger beat to make up for the missed one as well as dizziness and other symptoms |
Fran
| | Posted on Wednesday, September 17, 2003 - 10:25 am: |   |
Sorry Steve, I jumped the gun. When I read that you got "scalp tingling, feeling of pressure going up my neck to the top of my head", my brain went into overdrive and substituted hives, another condition associated with MSG. You really do need to watch MSG from now on Steve. Those PVC's are a known trigger for episodes of atrial fibrillation. Thats how mine started PVC's and PAC's. It got worse and worse and ended up with a host of other complaints. Fran |
Steve
| | Posted on Wednesday, September 17, 2003 - 12:09 pm: |   |
Hi Fran, I'm not sure whether the scalp tingling could be sort of hives now thinking about it, but it seemd to last a second or so and coincided with the extra hard heart beat I had visited forums on PVCs before realising the MSG link and there are many frightened people on those forums whose doctors tell them to live with it as it is benign, but yep A-Fibs can be a follow on and can be very much more than just a benign condition!...I wonder how many more of those people like me just haven't made the link with MSG yet |
Judy T
| | Posted on Thursday, September 18, 2003 - 7:49 am: |   |
Steve, I bet there are a lot of folks that haven't made the free glutamate-A Fib connection, after reading up on PACs and PVCs because of discussions on this board. My doctor took notice when I said that magnesium helped my blood pressure irregularities. While I know food was a trigger, she is looking at heart 'somethings'. |
Margie
| | Posted on Thursday, September 18, 2003 - 10:20 am: |   |
I hear you Judy. I know a sweet gal who suffered panic attacks for years and developed A-Fib. She ended up having to get a pacemaker. I tried to tell her about the poison being put in our food but I don't think she listened to me at all. It is SOOOOOOOOO sad. |
Fran
| | Posted on Thursday, September 18, 2003 - 12:29 pm: |   |
Margie There are so many people out there with AF who will not have it that something so simple could possibly cause it. I have been trying to get the message across for a couple of years now. Whilst many accept MSG as a trigger and think their diets are free of free glutamate they are still eating it in cereals, etc, not to mention the myriad of supplements they all think so essential. They just will not accept that natural free glutamate will affect them. They think it very necessary - which it is in the right dose... Lone AF (that is without heart disease is becoming more and more common. What was once a disease of the old is now being seen in children. Mine started at the age of 22. I lost my cousin in law to an AF related death. I am watching another woman go through ablations and pills like there is no tomorrow. She listened, but said the diet was not practical. As does my sister with Rheumatoid ARthritis and Eosophageal cancer. My own fathers death can be atribute to MSG 0 he actually warned me off as far back as the mid 1970's. Pity I was such a know it all then and never listened. IT makes me feel so sad and so angry to sit back and watch the effects of a greedy commercial world ... |
Margie
| | Posted on Friday, September 19, 2003 - 3:51 am: |   |
Oh God Fran, You're not alone. I get the same way - Big time!! Some years ago I worked in ICU as a heart monitor tech. When someone's heart would go into V-Tach, I'd be the one to call the code. I can't tell you just how MANY people I saw with a-fib. It was ridiculous. It is not natural at all- and I used to wonder how these people developed such irregular rhythms - what could cause such a thing? It's absolutely horrid what these food companies are doing. I look back on 10 years of nursing and wonder how many I could have helped if I had only known. Now, as if to make up for lost time, my preaching is done every time I go to the grocery store even. I used to just keep to myself, but now I squawk at every one I see grabbing these poisons. Some agree, some are intrigued, and others look at me like I'm a nut. LOL Sounds like you've suffered a lot. Didn't you say you endured 18 years of seizures as well? |
Deb A.
| | Posted on Friday, September 19, 2003 - 8:37 am: |   |
And how many people's hearts, effected continually by MSG, developed more serious conditions...some that lead to death? It's so terrible to think about. AF is serious enough... couldn't it cause death if a natural rhythm wasn't brought back in time???? |
Fran
| | Posted on Friday, September 19, 2003 - 10:59 am: |   |
Deb A Only ventricular fibrillation will bring about certain death. Atrial Fibrillation in itself is known as a benign condition (unless there is underlying heart disease). The biggest problem with AF is the risk of stroke. This is caused by the blood pooling in the chambers of the heart as the heart is not pumping efficiently - and then causing a clot to travel to the brain - the lungs or where ever. Most people start out with paroxsymal AF (now and then) The events increase in intensity until eventually patients are in it all the time. This is called chronic AF. The Dr's have termed this remodelling - as if for some reason the erratic and irregular heart rate influences the cells in the heart to forget how to beat properly!!. To me it is obvious that remodelling is no more than continued consumption of what caused it in the first place. At least for me it was. I was in chronic AF (all the time) and when I stopped MSG, looked at my diet and hydration - the AF followed suite a while later and stopped too! Yes Margie I also had seizures too. To me the worst scandle associated with MSG induced AF and seizures is the antiarrhythmics and seizure meds the patients are put on. They don't stop the episodes - Few can tolerate the side effects and long term they cause more problems and more illnesses. The pharmaceutical companies must be in their element with all these illnesses. They even project that more and more people are 'catching these illnesses' and forward plan with this in mind.... It makes me MAD. Don't tell me the food industry, the FDA (FSA in our country) and phamaceutical are not in cahoots with each other. Then they make half hearted pleas for more health awareness. Tell us to exercise more and eat fruit and and veg - which they are genetically modifying. To eat oily fish at least once a week - we need it a lot more than that. All animals fed the right diet would provide us with omega 3. But because of intensive farming methods they are full of saturated fat and omega 6. So we are way way out of whack. Omega 3 is a daily need to balance omega 6 so over prelavent in our diets- not a weekly need. Could go on and on. But you will have all got my drift now. I feel as if my family members have been murdered or are in the process of being eliminated. I have outwitted them but no-one will take me seriously. So the next step is to proclaim me mad, or humour me. I came across reference to a new type of eating disorder today. It has to do with health concious people who are elimintating foods they percieve to be unhealthy. They call it something like hypernervosa.... More labels to undermine those in the know. "Its not their fault - they are ill. Which made me wonder if eating disorders such as annorexia and bulemia are caused by MSG. My sister was bulemic for a while, and I wondered at one point if I had a form of annorexia because when ever I ate food I could feel it doing bad things round my body (if only I had known that it was the MSG in the food and not the food itself. Oh dear... It is so awful what is happening and I feel so helpless to do anything. |
paula
| | Posted on Friday, September 19, 2003 - 11:44 am: |   |
Fran, please dont feel helpless. you and everyone else on this site are helping all us new people learn and come to terms with what we can and cant feed our families. I know just how you feel, i look at adverts for sweets and think how they are poisoning our children. Alot of my family and friends think i am overreacting to missinformation on the internet, so i tell them to try and give up the msg and see how it would make them feel so much better, i havent had alot of takers yet but alot of excuses. The one person who does take me seriously is my auntie in birmingham who works with autistic children, she knows that food does effect the children but knows nothing about msg. She wants as much information as possible so if i can help some of those kids as well then alot of the credit will come from you guys who have helped me. Fran what type of seizures did you have? my 3 yr old has been have what i think are west syndrome /infantile spasms. they are the only thing i can find to discribe what he has, i am seeing the peadiatrition this week and am very worried about them trying to put him on meds when i know he is very sensitve to msg. thank god i have hypernovosa, i could save my sons life with it!!!!!!!! |
Judy T
| | Posted on Friday, September 19, 2003 - 1:51 pm: |   |
Paula, Get your auntie the book, Crazymakers by Carol Simontacchi. You'll like it too. Talks about free glutamates and ADD and autism as well as the diets of infants and children. Good read. |
Roy Piwovar
| | Posted on Friday, September 19, 2003 - 2:39 pm: |   |
Linked below is an article on West Syndrome. Some of the drugs used to treat it can have serious side effects, including benzodiazepines: "By binding to specific receptor sites, these agents appear to potentiate the effects of GABA and facilitate inhibitory GABA neurotransmission and other inhibitory transmitters. Drug Name Clonazepam (Klonopin) -- Considered second-line AED therapy against spasms associated with West syndrome. Adverse effects and development of tolerance limit usefulness over time. Nitrazepam and clobazam not approved by FDA in US but are available in many countries worldwide. Pediatric Dose Maintenance dose: 0.01-0.2 mg/kg/d PO." http://www.emedicine.com/neuro/topic171.htm |
Deb A.
| | Posted on Friday, September 19, 2003 - 5:18 pm: |   |
Thanks, Fran...this entire discussion is very interesting..enlightening...frightening. Shows how much glutamate (from food) is being ignored by the medical/scientific world and how it must be recognized for what it is...a toxic substance. |
Margie
| | Posted on Saturday, September 20, 2003 - 12:13 am: |   |
Fran, You are not at all helpless. Your LIFE is a living testimony to the harm this stuff can do to people. A while back ago I read a post by you of how you suffered seizures for 18 years, and how you were given all those meds for so long -- only to find that hidden msg was the culprit. I was so taken back by your story, that ever since, I have included your testimony when I tell people about the poison in our food. And I have told quite a few! I did not even know that you suffered a-fib as well! I met a young lady today who is going to check out the site, because she is also having 'symptoms' that are unresolved by conventional treatments or tests. I feel your anger, sadness and frustration - and share it! One thing that might help you is Angie Fennimore's story. It has really helped inspire me...especially when that 'helpless' feeling comes one. She wrote a book called "Beyond the Darkness" Following a compelling NDE she related how we are all interconnected and everything we do has an effect, for better or for worse - and not to get discouraged because of what we do (or do not) see, because our effort, no matter how seemingly "small" it appears, affects countless lives. You can read her experience here: http://www.near-death.com/experiences/suicide04.html I believe anorexia and bulemia can also be connected to msg sensitivity. I met a lady who was msg sensitive who also suffered both anorexia *and* bulemia when she was younger. I'd be curious as to what foods are rich in omega 3, and what it's benefits are. Even more so, did you notice a difference when you first started taking it? |
Fran
| | Posted on Saturday, September 20, 2003 - 10:51 am: |   |
Thanks for that Margie. Every so often I feel like I have not done enough. But you are right we all have an impact on others - and who's to say that months/years down the line, something I have said will suddenly fall into place for someone and they will know what to do. I don't actually take the supplement form of omega 3 - though I give it to my daughter and husband. I eat herring every day - and that is my source (they won't touch it). And yes I/they feel a great benefit. For me my mind is clearer and quicker, my movement feels more fluid and my skin softer. For my husband it helps his joints and for my daughter it does wonders for her ADD. I'm too scared to try the supplements - but I know that codliver oil would be good if you can stomach the taste. More on Omega 3 http://www.selfgrowth.com/articles/Wilmot1.html I've just read that testimony. WOW. That is powerful. I know it too. It mirrors experiences I have had. And I shouldn't loose sight of what is important. Everyone should read this. |
Margie
| | Posted on Saturday, September 20, 2003 - 1:41 pm: |   |
Yep, I had to choke back the tears reading it. Great story, that a lot of people could probably relate to. My boyfriend's daughter called today. She has been studying to be a chiropractor. I gave her an earful, including your testimony and although she was suprised, she actually believed it (about msg)... she had heard some of the info before (very vaguely). Who's to say she won't help save countless people later on because it 'came together' and she actually *saw* results with her patients who gave up msg? Some plant seeds, others water them, others tend to them and yet others harvest them. Just because you are watering (instead of harvesting) a plant doesn't mean that you didn't have any effect on the ripened crop! It would have withered without having been watered or tended to...we're all in this together ;) I never did care for fish much (except fish/chips, tuna, and croppy). Does Herring have a real fishy taste to it? And do you just buy it from the grocer? Thanks |
Fran
| | Posted on Sunday, September 21, 2003 - 2:48 am: |   |
I'm so pleased your sons girlfriend is taking notice. She will be able to help a lot of people, and I mean really help. I hope she comes here as and when she sees results in her patients. She will be amazed - so long as the patient understands that MSG is used wider than Chinese, and labels its listed on. A lot of people don't like fish - especially the oily ones. They tend to have a stronger taste. I find that the older the fish the stronger the taste. Fresh from the sea and straight in the pan you hardly get a fishy taste. When I eat it I feel it doing good. I used to fry them in oat meal and sprinkle with lemon and sea salt on the plate. It really hit the spot - but I am off all grains now, except for the odd cheat. Herrings would be more available, and better quality, from a fishmonger, or straight from the landing pier. A great way to eat herrings - and really tasty is smoked. We call them kippers. Our local smokehouse (must be quite prestigious as Harrods etc is one of its biggest customers) makes delicious ones. Just herring, sea salt and oak smoke. But they have a kipper club and send out kippers all over the world. I'll see if they ahve a website. |
Fran
| | Posted on Sunday, September 21, 2003 - 3:07 am: |   |
Not sure if they deliver over the pond. But you may find something nearer to home. And this might help those in the UK. http://www.summerislesfoods.com/summerisle/index.htm |
Steve
| | Posted on Sunday, September 21, 2003 - 8:07 am: |   |
Hi Fran, you can't beat fresh fish but if anyone in the UK needs something convenient in the meantime the german stores Lidl sell Mackeral in tins at 39p ingredients are just mackeral and sunflower oil and also sardines at 19p! you would think the tin costs more than that also Tesco have very reasonably priced Omega3 capsules if you can take them Steve |
Tom Fernstrom
| | Posted on Monday, September 22, 2003 - 5:48 am: |   |
Fran, You may have to re-think whether A-Fib is less likely to cause death. I thought I had A-Fib with an irregular heartbeat as my symptom of excitotoxin poisoning. Upon further analysis and a few trips to the emergency room, it was determined that the excitotoxins actually caused my A-Fib to accelerate my heart rate so much that the heart would actually “flutter” or “quiver” when the rate exceeded 200+ Beats Per Minute (BPM). The last time this happened was when I had a lot of stress in my life and I was being careless about excitotoxin abstention and taking my supplements regularly. Stupidly I did not call 911 and instead had my wife drive me in heavy morning traffic to the hospital. Meanwhile I used the method I have posted on this site of coughing heavily to kick start my heart and stop the “fluttering”. I could tell during the ½ hour drive that about every two minutes I got a very lightheaded feeling and felt as though I was going to pass out. I had my stethoscope with me and could actually hear what I thought was my heart stopping. The coughing did succeed in getting the heart to start beating and would give me a slight reprise until the rate increased again. Once I got into the emergency room and hooked up to the monitor, the attendants could see that my heart rate was running at about 220 BPM and every now and then would race even higher and go into a quivering stage. Of course at these high rates and especially during the quivering, blood flow effectively stops and a blackout from lack of blood to the brain would/could occur. The episode brought back memories of what I thought were seizures from years ago that were actually occurrences of A-Fib to the point of these “blackouts”. Back years ago I would have periods where I would experience a ringing in my ears as I felt a lightheadedness. Pausing to take heavy breaths sometimes brought relief and the feeling might pass. Other times the feelings would not subside and I would actually “blackout”. Once in the bathtub, once at a restaurant, once on a beach and once at a museum I experienced these blackouts, I fell to the ground for a few seconds and then recovered. Reflecting on these episodes allows me now to realize that the falls probably kicked the heart back into a more regular beat out of this above described quivering mode. My doctors back then attributed these episodes to seizures from high blood pressure and stress and prescribed blood pressure meds and sedatives. It wasn’t until I went into permanent A-Fib to the point of experiencing the classic symptoms of Congestive Heart Failure (CHF) that a new doctor I had switched to admitted me to the hospital for proper treatment. It was during my recovery that I found the NOMSG site and eventually migrated to this site and found excitotoxins as the true cause of my A-Fib and accomplished the well being relief I have today. In summation, I feel that there is a real life threatening danger to A-Fib episodes brought on by excitotoxin ingestion. |
Fran
| | Posted on Monday, September 22, 2003 - 11:21 am: |   |
Hi Tom You are correct when you say that AF can be life threatening. What I was trying to say was that AF "in itself" is not thought to be life threatening. I have got into this habit because so many people get it and are frightened out of their wits with it. For 99% of people the arrhythmia runs its course and either naturally goes back to sinus rhythm or is cardiodiverted with electric shock or drugs. Some people don't know when they are in AF, some find it so frightening, but for the great majority it is stroke that is the biggest threat. AF is also stress related and the last thing a person in AF needs to know is that there is a small chance that the AF could produce a real life threatening arrhythmia - when they are caught up in the uncertainty of when it will next hit, or whether this episode will be the one that causes the additional factor. SO I HAVE TO STRESS THAT THIS IS ONLY A VERY SMALL CHANCE, unfortunately Dr's can tend to miss it.... As you, and I, have both found out to our detriment - AF can lead to other worse arrhythmias or to ventricular speeds that the body cannot cope with. Like you I used to pass out and seize. Unfortunately, my Dr's said it was epilepsy. It was not - they found out 18 years later - and like you - it was what is known as convulsive syncope. This can be caused by many things going wrong with rhythym. Sometimes the pass out is caused by swings in blood pressure - caused by the differences in blood pressure caused by such an irregular irregular heart beat and rate. Sometimes when the heart is returning to sinus there can be a long pause in the Sinus node of the heart - so the ventricles do not beat and BAM - you are down like a lead weight. As there is also a lack of oxygen getting to the brain it can cause convulsions - Very similar to Epileptic seizures. Many people with 'epilepsy' are now being discovered to have something wrong with their heart and it had nothing to do with epilepsy. Epilepsy is now becoming one of the most misdiagnosed syndromes. Other arrhythmias arise with problems with the QT wave. If it is prolonged (and a lot of the meds they treat AF with can cause this) it can lead to an arrhythmia called Toursades du pointes. This can also be a fatal arrhythmia. Hence why some people with AF end up on a pace maker. I would have been one of these if my seizures and heart rhythm were caught on monitor. As it was they were not. And like you I discovered this site and the books on MSG which literally saved my life. I had 5 near death experiences amongst thousands of blackouts. I lived in total fear of the next one as I knew that one time, maybe the next, I would not get back and I would die just like that. Both of us are truly blessed. We found out the cause and can avert it. I just worry so much about the people who don't understand the importance of stopping MSG. But you are right and maybe I should not play it down so much, but AF with associated factors can lead to death. But do you remember how frightening it was in AF thinking you might die anyway - and looking for comfort and reassurance that it would pass, which it would most of the time. That is when I try to come in and educate people on the effects not only of MSG but free glutamate aswell. Thanks for giving me the opportunity to clarify |
Margie
| | Posted on Monday, September 22, 2003 - 11:31 am: |   |
Wow Fran! 5 near death experiences? I've heard people who have had them say they lose thier fear of death, but this is not true in your case? I would love to hear more about your experiences. If you don't want to post them, drop me an email? Thanks |
Judy T
| | Posted on Monday, September 22, 2003 - 11:39 am: |   |
Tom and Fran, Fascinating read. Sidebar: A well known local man wasn't feeling well two weeks ago. The doctor sent him to the nearest city (160 miles away) for a stress test. His BP went to 230 and the techs said go back to the doctor in your town with the results. Two hours later he stopped at a restaurant, had some soup, felt lightheaded and nauseous, went outside to get a breath. He was buried this weekend at age 57. Hmmmm. I can not and will not second guess but part of me obviously wonders.... |
Margie
| | Posted on Monday, September 22, 2003 - 12:34 pm: |   |
Judy, Do you have the link/reference for that? |
Fran
| | Posted on Monday, September 22, 2003 - 1:19 pm: |   |
Margie ITs not that I am scared of death, we all have to go sometime. When my time comes I will be ready. I've buried my mother and father over the course of the past two years, and my sister is fighting esophageal cancer after 9 years fighting rheumatoid arthritis which has more or less crippled her. For both my mother and father their time came after long long illness. My mother was weary and had struggled for every breath for the past 10 years, and my Dad had no knowledge of what was happening anymore in his demented state. They were both blessings in disguise (and when I saw them both in death I knew their suffering was over and I almost felt jealous). My sister's time has not come. She has a young son to bring up. Incidently, he hung himslef by mistake (playing soldiers) in June this year. My son found him and got me. He was not breathing and was blue when I got there. I had great difficulty keeping the pressure off the short chain round his throat with one hand whilst holding his weight under his bum with the other arm. I just screamed and screamed for help - till my husband and neighbour arrived. Then we managed to get him down and he was convulsing for 3 and half hours after. It was awful. The ambulance, helpicopter paramdedics and Dr's could not bring him round and it was not till he reached hospital that he regained conciousness. For a while his mental state was in jepordy but luckily he has no lasting effects - although he has no recollection of what happened. I am just am not ready to go yet. I have so much to do. My near death experiences were feelings of terror in a tunnel. I was struggling to get back up the tunnel back to my body. One time I got to the end of a tunnel and was in a green and overgrown field. There was no-one there but a gravestone. I looked on the headstone but there was nothing written on it. I knew then that I was coming back. Then I came back into the tunnel which had turned grey. This was horrible again, as I could hear myself trying to breath - but rasping. I could hear a very very slow heart beat, with whooshing inbetween that was deafening. Then when I got this normalised I opened my eyes but could not move, then when I could move I could not feel my body, then when I went for the phone to phone for help I surprised my self by knowing the number, but when I opened my mouth to speak I could not form words. I didn't have any of the experiences that others speak about. But my beliefs are different. I believe that death is a long sleep till the ressurection. So my near death experiences were to my mind my journey towrds death and a long sleep. I am not ready yet as I said. I have a lot of work to do and others to help. Once my work is done then it will be time. Hope you understand that |
Judy T
| | Posted on Monday, September 22, 2003 - 5:52 pm: |   |
Margie, No. This happened in my small hometown this week. True story. |
Laurie M
| | Posted on Monday, September 22, 2003 - 5:55 pm: |   |
Wow Fran we both believe the same thing about death. That is pretty unusual these days with all the immediate translation to heaven stuff out there. I won't go into a religious discussion Just thought I'd give you a ditto. |
Margie
| | Posted on Monday, September 22, 2003 - 6:50 pm: |   |
Sorry to hear about your Parents, Fran. Hope your sister finds peace and relief through her trials. I lost my mom back in 96 but it still feels like only yesterday. Thank you for sharing your experience! Judy, don't mind me... I'm just looking for as much detailed dirt as I can find so my rantings carry more weight ;) |
Valerie
| | Posted on Wednesday, October 01, 2003 - 5:50 pm: |   |
Hi, Here's my e-mail. I live in Boulder Creek, California. Kamalaval@aol.com |
Lisa Marie
| | Posted on Thursday, October 23, 2003 - 1:19 pm: |   |
Lisa Marie Spies Swinford spies123@aol.com Jackson, Mo (Southeast Missouri, right next to Cape Girardeau) |
Jill
| | Posted on Saturday, March 13, 2004 - 3:26 pm: |   |
Jill pollysluggo@netzero.com Dayton, OH Hi! I've never posted to this site before, but try to scan it for information whenever I can find the time (not as often as I'd like!) I'm terribly sensitive to MSG, and have read everything I can about the subject. Deb - your book was great and was one of the first that I found in my quest against MSG! Unfortunately, the more foods I eliminate from my diet, the more sensitive I seem to get. I recently found out about a treatment that has helped others with MSG problems, and I have just started treatments myself. I'm so encouraged that I'd like to share the info with you all too! If any of you have heard of Jack and Adrienne Samuals, they also mention this on the Truth In Labeling website under the heading "Dealing with MSG sensitivity" and claim that it helped them also. It is called NAET, which stands for Nambudripad's Allergy Elimination Technique. Dr. Nambudripad has written many books, but the main one is called "Say Goodbye to Illness". She has a website at www.naet.com, and you can find out more about NAET there as well as view the books she has written. This is the most promising information I have found to date, and I am very hopeful that it is going to help me! I was able to talk to a lady whose problem with MSG was so severe that she was told she could die if she had just one more attack. She went through this treatment and now says she can eat whatever she wants, including eating out in restaurants! Of course, we must remember that MSG is still toxic and will poison our bodies even if we don't feel the effects, but it would be so nice to be able to eat somewhat normally again! As I said above, I have just started treatments myself, but found out that I am allergic to everything the doctor tested me for so far: eggs, sugar, artificial sweeteners, Vit A, Vit B complex, Vit C, magnesium, salt, and of course, MSG. He treated me for eggs and after totally avoiding them for 25 hours, I should now be able to eat them with no ill effects. Of course, I won't be able to tell much difference until I get a few more of the allergies under control. I'm sorry this is so long, but I just wanted to start spreading the word that there could be help for those of us who suffer from this horrible problem! I wish I had heard about this treatment years ago, but maybe if we can all start feeling better, we'll have enough energy to fight against the MSG movement! I'd love to chat with anyone who has heard of this or would like to know more about it. Many thanks to you, Deb, for this wonderful supportive website! Together we will make a difference!!! |
Deb A.
| | Posted on Saturday, March 13, 2004 - 9:47 pm: |   |
Please keep us posted, Jill, about your treatments. And good luck! |
ibveronica
| | Posted on Sunday, March 14, 2004 - 6:22 am: |   |
ibveronica@charter.net Clarksville, TN Proud home of the 101st ABN DIV Screaming Eagles! |
Anonymous
| | Posted on Sunday, March 14, 2004 - 12:28 pm: |   |
Jill: Do a keyword search for NAET on this site to see how other posters have done with this treatment. Some have done well. |
Jill
| | Posted on Tuesday, March 16, 2004 - 11:31 am: |   |
Thanks so much, Anonymous! I had no idea that NAET had even been discussed on this website before! I'm trying to read all the information, but it takes such a long time. I've just ordered the book, Say Goodbye to Illness, and will definitely continue with my treatments. I think it's worth a try! I never have any energy, cannot sleep, get heart palpitations, "foggy brain" and feel so bad most of the time that I'm willing to try about anything! Thanks again for taking the time to respond. Good luck to you... |
BKN4TH
| | Posted on Sunday, March 21, 2004 - 10:30 am: |   |
Any one have there toungs swell up from MSG? |
Deb A.
| | Posted on Monday, March 22, 2004 - 7:44 am: |   |
My father-in-law's throat and tongue swell so much when he gets MSG that he can't breathe. He as induced vomiting in restaurants as a result. |
Carol S.
| | Posted on Monday, March 22, 2004 - 12:16 pm: |   |
The day I made the "MSG Connection" I ate Thai food and my throat closed so my husband to me to the hospital... I'll keep the vomiting idea in mind for my next unexpected emergency. Thanks again Deb for all you do for us!! |
jolts
| | Posted on Monday, May 31, 2004 - 9:39 pm: |   |
Hello everyone. My name is Pat Gallagher Sr; 52 y/o male & I live in Toms River, NJ email: smarttowin@comcast.net |
Carol H
| | Posted on Tuesday, June 01, 2004 - 5:33 am: |   |
Hi Pat! Welcome. I live in North Jersey. If you want any tips on places to shop in New Jersey for special foods, I'll happily help you out. You can reach me at carol@msgtruth.org or at thesweep@hotmail.com |
Deb A.
| | Posted on Tuesday, June 01, 2004 - 7:46 am: |   |
Jolts, you are one lucky person to have Carol nearby! |
jolts
| | Posted on Tuesday, June 01, 2004 - 8:15 pm: |   |
Hello Carol H. Nice to hear from you. Someday I just might like to do that. Every once in a while I head up north to Madison to see my mom. But I'm just starting with this msg stuff. There's a big improvement already. But not with the cooking. I did my 2nd recipe in Deb's book & screwed up...ha. But I ate it anyway. I'm not a cook. But I'm trying. I'll save your email for future reference. Bye for now. Deb A I take it that Carol is the owner of msgtruth.org. Than in that case I guess I am lucky. I've done some reading on her site. I will be going back there I'm just trying to read everything here first. Today I brought your book to work with me so I could read a couple of pages which I did. But I must be careful that I get my work done...ha ha. Have a good night! Thanks...Pat Sr |
Carol H
| | Posted on Wednesday, June 09, 2004 - 8:51 am: |   |
Hi Pat and everyone - my hotmail account is not working - so please send any emails to me at carol@msgtruth.org from now on. Thanks. |
Terry
| | Posted on Wednesday, July 21, 2004 - 2:03 pm: |   |
I would like to find some support in the Atlanta, GA area. Is there anyone in this area besides me that have MSG reations? If you e-mail me, please put MSG in the message line. I get alot of e-mail and delete most of it. |
DAVID HEMLOCK
| | Posted on Tuesday, December 21, 2004 - 6:27 pm: |   |
Hi For the past year I have suffered from very bad coughs and it lasted for six months, and then one day someone I met said do you eat crisps? Then I noticed something called MSG, I am so angry I cannot tell you what I wanted to do, that they put this rubbish in all the foods just to enhance the flavor.I lost my job I could not go for interviews as the vomiting got worse and When i went to my Dr he said i had ashma, Please tell what foods to eat, I went to Kings collage hospital In London and had tests but he did not have a test MSG, So he could not give my employer a sick note, madness, so why did I wrench my stomach for nearly six months? sorry for the spelling. |
DAVID HEMLOCK
| | Posted on Tuesday, December 21, 2004 - 6:39 pm: |   |
Hi I eat Baxtors soups, they have no MSG in them, these seem not to make me sick, if this helps anyone ,it's mad I have to eat something and if I'm not sick I buy more of it, why is this not knowN world wide? Everybody I meet now I tell them if they have trouble breathing it is because of MSG HOW MANY PEOPLE ARE DYING BECAUSE OF MSG? WHY IS THERE NOT ANY COURT CASES? |
Roy Piwovar
| | Posted on Wednesday, December 22, 2004 - 3:51 am: |   |
David, While the Baxter tomato soup (linked below) says "no additives" under its ingredients list and seems OK, the other varieties I checked did not make that claim and seem to have hidden forms of MSG. For the rest of us, Baxter soups only seem to be available in the UK. http://www.baxters.co.uk/products/organic/002.html |
Deb A.
| | Posted on Wednesday, December 22, 2004 - 8:35 am: |   |
I talked with a lawyer friend about a case, and he told me that he would be seriously worried about his life and/or his job if he took it on. You have to know that the FDA, unfortunately, is not very reliable when it comes to protecting our nation's health. They are way too cozy with the drug and food industry for that. Many of the employees of the FDA, when they leave it, are offered cushy jobs with pharmaceutical or food companies. Gee, I wonder what they did to get those jobs? Some that we know of, according to Jack Samuels (www.truthinlabeling.org), have retired from the FDA, and are put on the board of directors of huge food companies, and just collect nice incomes. The word is spreading, David. People are making the connection to MSG. We need more people like you who are not afraid to warn others... please keep up the good work in the UK. |
Deb A.
| | Posted on Wednesday, December 22, 2004 - 12:07 pm: |   |
David, we have shipped several of our books to the U.K. and to Australia, if you'd like some additional help. It's a survival guide and contains lots of information about hidden MSG. If not, please read all you can at our site at www.msgmyth.com, and at www.msgtruth.org, and Jack's site. There are lists of hidden sources of glutamate on all the sites. |
MEMorrisNJ
| | Posted on Thursday, December 23, 2004 - 1:16 pm: |   |
And now there is alot of attention to terrorism and incoming food to the USA. I am afraid of what they will come up with but wouldn't a better protection be supporting and protecting local farms.Oh well. |
Deb A.
| | Posted on Thursday, December 23, 2004 - 5:47 pm: |   |
Amen to that. |
Carol H
| | Posted on Monday, December 27, 2004 - 7:02 am: |   |
Michael Moore is taking on the pharmaceutical industry and the FDA in his next movie. We should write him. |
PamE.
| | Posted on Friday, April 15, 2005 - 2:46 pm: |   |
Pam Edgerton Beaverton, Oregon pame@accurate.org |
janet
| | Posted on Wednesday, May 11, 2005 - 1:31 pm: |   |
i would be grateful to find canadians/resources around here...i am in alberta canada nucopia@telus.net riverfloaty@yahoo.com |
Kari B
| | Posted on Friday, May 27, 2005 - 6:38 pm: |   |
Blessings!! My husband led me to this website. I have been reading about MSG and I would like to get Deb A.'s book. I would love info on where to shop for food, (I live in Evansville, IN.) products for the skin and hair, deodorant, hair color?? I am new at this and appreciate your help!! |
Deb A.
| | Posted on Friday, May 27, 2005 - 9:18 pm: |   |
Kari, our book is available at www.msgmyth.com. It's full of tips and recipes. You can do a search here at the left menu under "Utilities" . Keywords to use might be cosmetics, shampoo, deodorant, etc. |
Emily
| | Posted on Monday, March 20, 2006 - 9:06 am: |   |
Emily Schmidt Emilybschmidt@hotmail.com Salt Lake City, UT |
Anonymous
| | Posted on Saturday, July 15, 2006 - 6:12 am: |   |
Sophie,purported McIntosh analysts fall silliness?raptly exploring mangler holdem video game chariot superblock Heinze:exceptionable.lemming free online holdem no sign up contended,purplest spinal free holdem for palm
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Lynn Unregistered guest
| | Posted on Tuesday, March 25, 2008 - 7:50 pm: |   |
How do I register?? |
LaurenC Unregistered guest
| | Posted on Thursday, March 27, 2008 - 5:37 am: |   |
Hi Lynn. You don't need to register. We just plug in our user name (whatever you want) and the password is "msgkills." |
sazzie Unregistered guest
| | Posted on Tuesday, April 01, 2008 - 3:54 am: |   |
Does anyone know a safe B12 and B6 supplement? I am vegetarian and worried I dont get enough of these. I saw a thread that said centrum liquid was good....still true? I currently take migrelief---anyone know if that has hidden fillers? Thanks guys ---I am just starting out on an elimination diet for (10 years of) migraines recommended in "Heal your headache". After 3 weeks of horrible rebound I do feel better, but I've realized that this diet doesnt go far enough in eliminating ALL hidden MSG. I still have tingling and flushing in my face and scalp that can flare up into a full blown migraine. Bless you for your site --Wish me luck  |
LaurenC Unregistered guest
| | Posted on Tuesday, April 01, 2008 - 4:53 am: |   |
Hi Sazzie. I've been looking for a safe B-12 as well. I have a doctors appointment soon and was going to ask her what the ingredients are for the ones in shot form, though I'm not holding out much hope. There is so much hidden MSG that you really need to be careful. Are you going to do Debs test diet (on www.msgmyth.com)? I highly recommend it as you will start feeling better and then you can add foods and see what causes reactions. I have about 80% less migraines since eliminating MSG 5 months ago, so it's a process, but 20% beats 100% any day. Also, if you haven't purchased Debs book/cookbook, it's well worth it. I don't know about the ingredients in Migrelief, but I talked to my doctor and pharmacist about the medication I take, and they said I can remove it from the gel cap. I used to get bad rebounds from this medication and now I don't. |
Jerry Story Unregistered guest
| | Posted on Wednesday, April 02, 2008 - 1:18 am: |   |
About B12: Avoid cyano-cobalamin. Use methyl-cobalamin. Cyanocobalamin in the best case scenario is not used efficiently enough to be of much value. In the worst case scenario it acts as an anti-vitamin and can cause deficiency of B12. Methylcobalamin is okay. Confirm these statements from Blaylock's book "Health and Nutrition Secrets" and from a Google search. |
sazzie Unregistered guest
| | Posted on Thursday, April 03, 2008 - 4:34 am: |   |
Where do you get your Methylcobalamin Jerry? thanks for the tip. I ordered Blaylocks excitotoxins book, but that book looks good too. thanks again. |
sazzie Unregistered guest
| | Posted on Thursday, April 03, 2008 - 7:56 am: |   |
i just found www.organicpharmacy.org---looks good, anyone heard of it? |
Roy Piwovar Unregistered guest
| | Posted on Thursday, April 03, 2008 - 4:01 pm: |   |
http://organicpharmacy.org/ |
Jerry Story Unregistered guest
| | Posted on Thursday, April 03, 2008 - 6:50 pm: |   |
About methyl-B12: I get this from the local "health food" store. I had to get them to order it special. I don't have a lot of use for health food stores, but sometimes they have a few things of value. |
Karen Unregistered guest
| | Posted on Saturday, April 05, 2008 - 1:12 am: |   |
Karen ladybuggz@earthlink.net Las Vegas, NV God bless Deb and all the other pioneers in the fight against MSG. If it weren't for them going before most of us, and doing all the work, only God knows where we'd be now. I honostly think she saved my life, albeit accidentally. THANK YOU!!!! |
Deb A. Unregistered guest
| | Posted on Monday, April 07, 2008 - 4:02 pm: |   |
You make my heart very happy, Karen. Stay well...that is thanks enough. Sazzie, I hope you consider getting our survial guide as Lauren suggested. It will make your life a lot easier and answer many of your questions. Dr. Blaylock's book is excellent, but please be careful when it comes to vitamins. I have actually heard from 2 women who went to him when he was still practicing. He prescribed certain vitamins and they began to react to them. He is one of my heroes, so I am not trying to suggest he is wrong to prescribe certain supplements, but please be careful. Some vitamin B 12 supplements are better than others...methyl is better. The other is made from cyanide, as Jerry once told us. |
hhon378 Unregistered guest
| | Posted on Sunday, August 03, 2008 - 12:51 pm: |   |
Hi, I'm Heather from Holland, MI. Just found out about the MSG link. Hoping to connect with others in my area for support, information sharing and possibly forming a local group. |
Evanir Unregistered guest
| | Posted on Sunday, August 03, 2008 - 3:42 pm: |   |
I am Evanir from College Place, Washington my email: evanir123@yahoo.com I am having severe stomach pain and nausea and trying to follow the no msg diet carefully but it seems that I have an illness where the eosinophils accumulate in the mucosa lining of the digestive tract. Anyone knows what could cause it? It started after taking different medications for heart trouble and antibiotics for infections. Any suggestion is greatly appreciated. Evanir |
Dianne Unregistered guest
| | Posted on Sunday, August 03, 2008 - 8:36 pm: |   |
Evanir, Can you please tell us what eosinophils are? I know antibiotics can wreak havoc with the digestive tract. |
hhon378 Unregistered guest
| | Posted on Sunday, August 03, 2008 - 8:56 pm: |   |
Oops forgot to put my email! I'm Heather from Holland MI: hhon378@yahoo.com If you're local PLEASE contact me! I don't mind if ANYone emails me, altho i'm just a newbie and can't offer much help. |
evanir Unregistered guest
| | Posted on Monday, August 04, 2008 - 5:07 am: |   |
Diane, eosinophils are part of the white blood cells and they mark whether there are any infections in the body and mainly allergic reactions. When it is high it could mean many things among: autominnune diseases,allergies, parasites, leukemia, side effect of drugs such amphetamines and antibiotics (which I took for different infections). I also react to a lot of things including MSG, citric acid, aspartame etc. Without treatment doctors say that eosinophils could lead to nerve damage, heart failure and lung disease as these accumulate in the organs. I already have asthma and had an episode of heart failure. Now the mucosa lining of the stomach has been affected by eosinophils, which they call eosinophilic gastroenteritis. I know that the diet that Deb A recommends in her book is helpful, but I still seem to be making a lot of acid in my stomach and need to take acid blocking drugs as Prevacid. I am hoping someone in this forum will give me some clues, because I am really desperate. Thanks for your interest Dianne. Evanir |
Dianne Unregistered guest
| | Posted on Monday, August 04, 2008 - 10:21 am: |   |
Evanir, How long have you been strictly avoiding MSG and Aspartame? Sometimes it takes a while for toxins to be flushed out and the body to heal. I had a niece that was on antibiotics for over a year that lead to serious colitis. She had to go on steroids for a long time, which made her balloon up and gain about 100 pounds. Eventually her body did heal, she went off the steroids, lost all the excess weight and is doing great. I think if you listen to Deb A. and follow a 'safe' diet (that agrees with you also) you will find your body will eventually repair itself. I found a few posts that reference eosinophils, which I have copied below. Posted on Saturday, September 22, 2001 - 5:20 pm: -------------------------------------------------------------------------------- Don, thanks for the compliments. Actually, Tom Fernstrom, Roy Piwovar and Deb A have been key. I feel like my ideas all feed off theirs. As for your questions, I think MSG acts in a damaging way in all of us, since our body is quite adept at making what we need - any supplementation in the diet for anyone is excessive. MSG affects those who haven't made the connection as well as those who are detoxing. I do think not being "in balance" makes a reaction worse, and tangible. I think MSG is bad for everyone, even those who can't feel the damage - yet. As for DJ's question - glutamate in excess, natural, unnatural, and extraterrestrial (just kidding)- if it fits into the locks that cause doors in our bodies to open - pancreas/insulin doors, immune system/eosinophils doors, nerve cell stimulation doors, then it may be a problem. If it causes hypoglycemia, it will bring down the brains defenses, and as we know, even natural glutamate can be a problem in the brain in excess. If dietary glutamate, without even entering the brain, can cause a low blood sugar state, causing the pumps the brain uses to get rid of the glutamate already present to fail, then damage will be done. I admire Jack Samuels efforts over the years, but here is where our ideas part company. Glutamate anywhere in the body - even natural glutamate can be a problem in excess. If it fits into the same "locks" so to speak, it doesn't really matter to me where the heck it comes from. Manmade pesticides that are estrogen mimics can trick the body into thinking they are natural estrogens. That's the main trouble. Too much natural estrogen, as well as estrogen mimic can be a bad thing. Also, in Type I diabetes, even naturally occuring simple sugars can be trouble for someone who can't make insulin. It doesn't really matter if the sugar is "natural" or manmade. Errors of metabolism happen. Allegies happen. For someone who is allergic to carrots, like myself, even natural veggies can cause my body to shut down. I think it's more important what things can do once they get in the body, and their chemical composition, intead of whether they occur naturally or not. Posted on Sunday, July 22, 2001 - 6:22 am: -------------------------------------------------------------------------------- I posted this on the nomsg board but thought mention belonged here. The nurse Su, who posted on that site mentioned that her eosinophil levels became elevated after eating msg. I think she may be onto something there. Here is my response: Here is a link that may explain a big domino effect of MSG and cell damage. http://www.apbiotech.com/product/publication/lsn/19/pages/p21-full.htm Notice that Cysteine is one of the amino acids involved that mediates eosinophil deployment. Cysteine and glutamate compete with each other. Perhaps glutamate is the key that also fits in the same lock as the cysteine compound to unleash these eosinophils. Eosinophils are really the white blood cells sent out to destroy invaders and parasites, but which when unleashed in the wrong place cause the damage seen in asthma. What if glutamate by its action shortcuts the immune response, bypassing antibodies completely? By loosing damaging eosinophils which are "all revved up with no place to go", perhaps the nerve cell death we see from excitotoxicity is compounded with damage done by mercenary eosinophils that need to go out and kill something, but the antibodies are not there to direct them. There is also another post that contains this sentence "During inflammation, cells that participate in an allergic reaction, such as mast cells and eosinophils, are stimulated, and these cells have now been shown to be capable of producing NGF." see: http://www.msgmyth.com/discus/messages/247/257.html#POST1898 I found these by doing a search of eosinophils. |
Tiffany P. Unregistered guest
| | Posted on Friday, August 08, 2008 - 7:06 pm: |   |
Tiffany Wichita, KS extravagantchristian@yahoo.com |
Sara B Unregistered guest
| | Posted on Thursday, January 15, 2009 - 4:17 pm: |   |
Sara B Rochester, NY |
Sara B Unregistered guest
| | Posted on Saturday, January 17, 2009 - 7:30 am: |   |
Here is a pic of me and my family. Just so you can put a face to a name. Thanks....Sara
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Deb A. Unregistered guest
| | Posted on Monday, January 19, 2009 - 4:40 pm: |   |
Beautiful family! It's so nice to have a face with a name. |
Dianne Unregistered guest
| | Posted on Tuesday, January 20, 2009 - 6:09 pm: |   |
Sara B You are, indeed, a good lookin' bunch! |
Sara B Unregistered guest
| | Posted on Saturday, January 24, 2009 - 8:59 am: |   |
Thank you. You are so kind. I want to be around for along time to enjoy my family. I am very lucky to have such a supporting husband through all this. He is such a steady rock. Can't wait to see more pics of all of you up here! |
Dianne Unregistered guest
| | Posted on Saturday, January 24, 2009 - 1:52 pm: |   |
I think Deb may have pictures of some of us she can post. I believe I sent one to her a year or so ago. I'd post it myself, but I'm at my winter residence and don't have access to it here. But it would be nice to put faces to names. |
Deb A. Unregistered guest
| | Posted on Monday, January 26, 2009 - 12:07 pm: |   |
Send recent pics to avenger@msgmyth.com and we will post them here. |
kristy Unregistered guest
| | Posted on Friday, March 27, 2009 - 12:32 pm: |   |
Hi all, I'm Kristy from Thomaston, Alabama (kristyshanks@gmail.com). I feel very alone here in the boonies since I am in the heart of agriculture country yet no ones seems to know a thing about organics. At least I have plenty of land to grow veggies in my own raised bed, I just hope it does well (first time organic gardener). I also buy a lot of stuff online (how in the world did Deb accumulate all this info before the internet?!! she's amazing) and travel two hours to get staples from the nearest Whole Foods. I found a butcher that is only an hour away that seems to have meat that is fine though it is not pasture raised. I spread the word every chance I get and sometimes encounter genuine interest and other times rolled eyes. Who cares? I feel that I have a responsibility to share the truth with people, it's up to them whether they choose to listen or not. |
Dianne Unregistered guest
| | Posted on Saturday, March 28, 2009 - 5:52 am: |   |
kristy, Here are a couple of links I found to help search for local or organic food. The mercola website has many links. Don't know if any of them can help, but though it was worth a try. http://www.eatwild.com/products/alabama.html http://www.mercola.com/article/agriculture.aspx |
Melinda Unregistered guest
| | Posted on Monday, March 30, 2009 - 8:42 pm: |   |
Kristy, here is another one....some of the farmers or ranches will ship to you http://www.localharvest.org/search.jsp?lat=47.756355&lon=-121.643265&scale=6&ty=-1 |
Kaye Unregistered guest
| | Posted on Thursday, October 01, 2009 - 8:59 am: |   |
Is there anyone out there from Minnesota? Maybe we could help each other find "safe" local brands. My e-mail address is: ckpagels@yahoo.com I would love to hear from someone who lives in the midwest. |
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