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My MSG Recovery story....

Battling the MSG Myth » Share Your MSG Story/Recovery » My MSG Recovery story.... « Previous Next »

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Duchess
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Posted on Saturday, November 06, 2010 - 11:35 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

I cannot say I am 'healed' yet...however, I do believe I am on my way. :-)

When I was 23, I started experiencing back pain, muscle spams, sciatica, and problems with severe respiratory illnesses in the form of bronchitis. You could count on a yearly bout of bronchitis. I had eaten as a child a lot of processed food coming from a family ancestry of farmers. So I had a lot of free glutamates in the form of 'bean' soups that were allowed to 'stew' all day, instant rice or potatoes and then a lot of antibiotics because of those infections. I was always prone to the asthma/bronchitis type symptoms. Fastforward to now I am 48 years old. When I was 33 I went to a doctor for mood swings and hot flashes. I thought by this time I just had to live with the back pain. The doc wanted to put me on anti-depressants. Having worked in the medical profession and having a family that works in the medical profession, I knew this was not a path I wanted to go down. I walked out of the doctor's office and basically started my own healthcare. I thank God for marrying a conspiracy theorist. Because of him, I started eating better around age 28...he would not eat instant foods such as instant rice, potatoes or those hamburger helper meals...

Around 35 or so, my asthma and allergies kicked in big time. I was now having asthma attacks and rashes. Nothing could be done for the rash except to prescribe Prednisone. I said "no thanks". I knew the inhalers were bad. My father was a pharmacist and he told me, "whatever you do, don't take the inahlers. They will kill you." So I only used it when I absolutely had to...I found a website www.earthclinic.com and found a natural relief to help with the asthma. It worked and I no longer needed the 'inhaler'.
Finding things like oil of oreganol and olive leaf grape extract we got off antibiotics. We started really avoiding the known MSG products, but had no idea about hidden products. I would still have bouts with the all the above-mentioned issues.

My husband has seen how my natural remedies would work and I saw how some of his worked. So we decided I would try a naturopathic doctor in town who we had heard good things about. I went to see her about 2.5 years ago. She diagnosed food intolerance issues. I started avoiding those foods. Lo and behold, the rash went away. I was feeling better. I started living life and working on losing weight, a problem which has been with me my whole life since age six.

I started a program called the Fat Belly Cure. I lost weight, but I really, really started feeling bad. Along with drinkikng a lot of whey protein, again a MSG factor. Those sharp, shooty, jabby pains were getting worse, but thanks to this diet I found the 'sugar' connection. If I have too much sugar, I get really, really bad lower back pains. I am assuming a 'yeast' reaction. I was and had been having burning pain in my back which was what led me to the msgmyth board. I had googled burning back pain symptoms.

I had been reading about thyroid issues. I have always had a low body temperature of 97.6 or lower. My mother has had this, it runs in our family. So after finding Deb's board, I started making connections but I wasn't quite sure which came first, thyroid or MSG.

I had started the thyroid treatment. I read more and more on their boards, and find that a lot of them are supplementing and still having issues. I am thinking I don't want a lot of having to track, count, divide dosages and then add labratory tests to the mix. So I am experimenting albeit with fear and trembling. Because of the food intolerances, I had cut some foods out of my diet which I believe have caused some vitamin mineral deficiencies. I was taking supplements not knowing about the MSG factor. I have mentioned this to my ND, we'll see what happens. Anyhow, as I was researching for more answers, I find a B12 deficieny problem especially for those with a thyroid problem. I also find that B12 is most often given in a form that cannot be absorbed by the body. So by having MSG I believe it starts a process for me in being an endocrine disruptor which causes a thyroid issue, although hidden for a long time until something forces it out, then a Vitamin/mineral deficiency which in turn causes leaky gut symptoms, then moves on to neurological, inflammatory reactions and so on and so forth....

I have just cycled down off round #2 of my thyroid med. Today is my first day off my supplements. It is one day after my birthday, I am now 49. I have a slight headache...might be from smoke in the air which bothers me. But I am giving myself a birthday present of going MSG free in all forms and manners if I can possibly help it. Supplements included. I am scared because I am taking some to supposedly boost my thyroid, but how can it boast my thyroid if it has MSG in it. Almost all of the supplements I take have cellulose or gelatin...

So I think the initial response I had of feeling better off intolerances was short lived due to reducing MSG. But now it is back full force due to supplements with possible MSG contaminates...So, if anyone knows of a B12 with methylb12 source or adinsob12 source without MSG, could you please let me know....I don't know wheher or not I will have to have thyroid meds. Any advice there is appreciated. But now that I think I have figured out my process of MSG toxicity and cycle, I thought I would share my thoughts.

Thank you so much for your hard work on this board. By the way, my real name is Debbie, but I figured we had enough Debbies' on here ;)
ali
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Posted on Monday, November 08, 2010 - 5:56 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Hi Duchess, you have just inadvertantly solved a baffling thing for me. On stopping eating msg i saw many minor aiments disappear. The one that persisted was lower back pain. A burning hot sort of all over lower back pain. I have had it for years and it wasnt constant and as it came and went, i gave up worrying about it a long time ago. Just in the last two weeks the pain has completely gone.I finally gave up sugar in my tea over two weeks ago. On reading your post the penny just dropped so to speak, sugar or rather lack of has been the only thing ive changed. Thanks for sharing your story. Ali
Duchess
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Posted on Monday, November 08, 2010 - 6:48 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

:-) It is so reassuring to find the cause and know that it can be fixed. And your symptoms are a perfect description of the pain I was experiencing.
ali
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Posted on Monday, November 08, 2010 - 9:00 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Ive had it for as long as i can remember. One day good, the next day pain. No doctor ever offered a reason for it and i gave up asking years ago. Cut out sugar just over two weeks ago and the pain just disappeared. I hadnt even made the connection until reading your post. Thanks so much for posting, i can't thank you enough for solving the riddle. I wont be reintroducing sugar to put it to the test though!!he he I know its the cause, the evidence is plain to see. :-) Another one ticked of my list!!
Annie
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Posted on Friday, November 12, 2010 - 7:44 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Hi Duchess! My doctor tested my blood recently for deficiencies and such, and the only thing that wasn't normal was my B12 levels, they were super low. He told me to take a supplement ASAP. I went to the local health food store and literally sat on the floor and read every bottle of B12 supplements...the one I chose was called "NO SHOT, Superior Source Methylcabalamin," methylcobalamin being the form of B12 immediately available to your body. The ingredients are the methylcobalimin, lactose (from milk), and acacia gum. They are the kind that you put under your tongue and let it soak in that way, since stomach acid destroys B12. I know that us NoMSGers are to stay away from the gums, but I have not had any adverse reactions to these pills.

After taking the pills like 2 or 3 days, I felt IMMENSELY better...I was actually quite giddy, and I had more energy. My problem was lack of energy.

Hope this helps!
evelyn
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Posted on Sunday, November 14, 2010 - 4:55 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Hi Duchess - I love my liquid multi. I just add any extra's I need. At present that is a b-complex with C and magnesium and taurine - still the the one thing that has made the most difference for me.
Duchess
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Posted on Monday, November 15, 2010 - 5:45 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Thank you all for the words of wisdom. Evelyn, do you mind mentioning what brand name you use for a multivitamin? Annie, my husband and I have both started the B12 No Shot...by Superior Source. I have been on it about just shy of a week...I am noticing that my over all sense of well-being is greatly improved. I haven't noticed a big energy surge, but I am noticing that being off all the supplements the ND gave me that I was questioning does seem to be making a difference. The temperature is coming up on its own - thyroid, metabolic rate...I still have some brain fog issues and verbal motor skills that are bothering me but I am hoping that will correct with the B12. I guess I will pull the cast iron back out. I had gone with stainless steel as I thought we might have too much iron based on an article I read, but I think it must be due to the B12 being low and it wasn't an iron issue.

I am really anxious to see if the thyroid corrects itself....I have an appointment in about a week's time with the ND. So it will be a little bit scary to confront and say, 'hey, you're supplements aren't as good as you think they are...'
Duchess
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Posted on Monday, November 15, 2010 - 5:45 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Thank you all for the words of wisdom. Evelyn, do you mind mentioning what brand name you use for a multivitamin? Annie, my husband and I have both started the B12 No Shot...by Superior Source. I have been on it about just shy of a week...I am noticing that my over all sense of well-being is greatly improved. I haven't noticed a big energy surge, but I am noticing that being off all the supplements the ND gave me that I was questioning does seem to be making a difference. The temperature is coming up on its own - thyroid, metabolic rate...I still have some brain fog issues and verbal motor skills that are bothering me but I am hoping that will correct with the B12. I guess I will pull the cast iron back out. I had gone with stainless steel as I thought we might have too much iron based on an article I read, but I think it must be due to the B12 being low and it wasn't an iron issue.

I am really anxious to see if the thyroid corrects itself....I have an appointment in about a week's time with the ND. So it will be a little bit scary to confront and say, 'hey, your supplements aren't as good as you think they are...'
Duchess
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Posted on Thursday, December 06, 2012 - 6:44 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Update to an old story...:0 sorry, I know it's not funny but if you don't laugh about it, you'll cry and I would rather be laughing. I had started my journey on eating healthier...then I became convinced I had a thyroid problem, now I'm back to the it's MSG - kind of the which came first, chicken or the egg analogy. I have been trying to eat clean - took the thyroid med the doctor gave me, after being on the T3 for about two years and living fairly pain free - I started having horrible mouth sores. These were so bad the whole gumline was eroded away and I literally felt like I could feel bone. Painful, man were they painful. To eat anything was a nightmare. In addition, the skin rash came back on my leg. Just one leg and it looks like the worse case of impetigo ever...on top of dry skin...along with all the symptoms of a low thyroid...mood swings are back...etc., etc. and the list goes on...hubby even commented this morning about how I was doing better two years ago which at that time I was just eating better. Due to his job loss we had also gone back to some "cheaper" foods and you know the usual story...premade processed which I am convinced I am just going to have to figure out a way to make everything fro scratch and if he gripes about it, well....he begged me to go back to eating good because he can't take my mood swings...so I'll have to remind him when he gripes about the food right?? :0 anyhow, I think I really have reached my moment of realizing MSG is the culprit. I still do not know if I have a potato/seafood food intolerance. It's so hard to tell if that is the case such as the naturopath said or if it is just sulfite sensitivity. I have learned that, and it was a great group of people at a natural adrenal boards which gave me this info., if you are low in iron it can cause anxiety. My iron was extremely low so I do okay with Blue Bonnet chelated iron. I also recently found out that cooking in castiron did not help raise iron levels as it is a form of iron that is not metabolized. So I am still learning...the frustrating part is looking around at food on the shelf and knowing it was not really cheap food, and yet, I'm still having problems. I am off all meds, take a B12 supplement, my iron, some zinc which helped with hair loss...I had lost almost all of my eyebrows and looked like I was a Vulcan. I also had a really bad hair thinning in back. I was attributing this to hypothyroid and menopause...but now, I'm still back to I think it's MSG. I can see very definite facial reactions when I eat certain foods and my thyroid gland will swell up. So now I guess I have to really work on the hidden forms of MSG. I know you all must get tired of people asking...but really, I have checked out the links and I don't see a lot of the name brands listed here...or the ones that I do I can't stand the fragrance, issues like that...I was wondering if all could list the soap they use, shampoo, etc., again, I do not know if potatoes are a real issue for me (they do seem to be because if I eat Lay's potato chips I get joint aches??) so I really would be appreciative of advice or listings of the products you use as far as personal hygiene. I make my own laundry detergent with borax and baking soda. I use Dawn Original. I use Tide orginial for HE for my white clothes. I do better if I stay only with a sourdough commercial bread if I eat a 'premade' bread. I do not dare do any kind of other bread, same reaction with joint aches and pains, or worse...rash. And this rash doesn't seem to be wanting to go away...now the symptoms appear more like Steven-Johnson Syndrome which I'm guessing is just another MSG manifestation. I'll be pulling the book and reading again...I guess I am just really bad at staying in the kitchen and cooking and then freezing it. Lesson learned though...:-)
marie12
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Posted on Thursday, December 06, 2012 - 2:44 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

If you're getting a skin rash, and joint aches and pains from eating (wheat, gluten-y) bread, I would strongly suggest that you consider the possibility that you need to avoid gluten.

I actually discovered I had a problem with wheat several years ago, but I didn't look deeper and switched to spelt for the most part, until last year when I went completely gluten free.

Shortly after that I realized that quitting gluten helped a lot with the itching, but my skin was still acting up, but not so itchy, with some of the MSG alias's until I removed them; and then I added sulfites to the list. I am now much better, though still have a bit of healing to do.
Roy Piwovar
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Posted on Thursday, December 06, 2012 - 3:35 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Duchess, eyebrow loss may have other causes. If you don't want Whoopi Goldberg eyebrows, here are a few suggestions:

http://www.livestrong.com/article/254250-how-to-stop-eyebrow-loss/
Duchess
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Posted on Saturday, December 08, 2012 - 9:53 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

As always, Roy, thank you for the websites. I really appreciate the valueable information you all give. The zinc does definitely make a difference with the hair loss.

Marie12, I have been watching the gluten. I am still trying to figure out if I have a potato intolerance/seafood intolerance or if the sulfites were the real issue...hence experimenting because it would be nice to be able to eat bread if I can and a lot of bread has potato starch added...it's a slow process between eating, reacting, healing, and trying something else...it goes so slowly. But I do know there have been times where I ate a certain brand of bread and did fine with no joint aches. I can't say the same for potatoes other than growing up, I ate a lot of potatoes and it really didn't not seem to affect me or at least I didn't notice it so much. The usual thing that happens to me is that I find a brand, the store quits selling it..weird, I know...and then I have to try and find something else or else they add a 'new' ingredient. :-( :-(

Again, hearing what everyone uses helps a lot.
LisaS
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Posted on Saturday, December 08, 2012 - 8:02 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Certainly one can be sensitive to gluten. But something to watch for is that almost every bread is made with malted barley flour or some other glutamate ingredient (malt, cysteine, or several others). If you are sensitive to glutamate and aren't carefully reading labels, bread is too tricky to mess with, in my experience.

I've been having joint pain and have discovered it's a reaction to oxalate. (If you can eat spinach, it's not your problem :-) Potatoes and wheat are both problematic, though not horrible -- they are part of the buildup. I can eat some white flour as long as it is 100% wheat and not malted barley, but can't do whole grain as that is higher oxalate.
Duchess
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Posted on Saturday, December 08, 2012 - 9:03 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Thank you, LisaS. Every little piece to the puzzle helps. :-)
Deb A.
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Posted on Saturday, December 15, 2012 - 2:01 pm:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Duchess, I have done poorly with some potatoes and well with others. Ones that are HUGE, I now avoid, figuring they have been sprayed with a metabolic primer rich in free glutamate...which many farmers in Idaho and Washington use. I do best with ones grown in nearby Oregon. Wheat is so different from the wheat we ate as kids. Now it is Frankenwheat...GMO. I do best with organic wheat now.
Roy Piwovar
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Posted on Sunday, December 16, 2012 - 12:00 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Frankenwheat:

http://www.prevention.com/food/healthy-eating-tips/why-modern-wheat-considered-frankenwheat
Duchess
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Posted on Tuesday, December 18, 2012 - 6:43 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

Hi all,

I pretty much avoid potato and all grains except rice for now. I had some fresh spinach so I steamed some. Didn't have a problem...so I guess it's not oxalate. I have recently added taurine back as a daily supplement. I am curious to see if it is just a sulfite sensitivity due to gluten. I don't have a major reaction like someone would allergic to sulfites, but I find it curious that I tested positive to potatoes and seafood which both tend to have a sulfite issue. I really do think more and more of the issues are GMO and MSG products. It really infuriates me that so many of the products I buy are supposed to be "organic and natural" and yet, there is still a problem. If I do have a potato, I can have it about one time a month with no joint pains and it is typically a small golden potato...another curious reaction...my employer threw us a Christmas party and catered food from one of the better known Italian restaurant style foods. Within 1/2 hour, I had a sore breaking out on my gumline and by that evening I had felt like someone ran a cheese grater over my inside upper gumline. So I know it is coming from the food. Bad news, I threw my back out again and have had to take a whole boatload of heavyduty pain relievers and muscle relaxers. I feel like I'm caught in that black vortex and trying to get out seems impossible. So still nursing my injury and trying to get myself healthy. Oy!!!

Thank you again, Roy, for the link. Wa State is running a petition for labeling GMO foods for anyone interested in signing especially since the CA one failed....:-(
Duchess
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Posted on Tuesday, December 18, 2012 - 6:45 am:   Delete PostPrint Post   Ban Poster IP (Moderator/Admin only)

I forgot to add...Deb A., I avoid any type of veggie or fruit that is huge now...trying to train hubby that way too... ;)

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